Evidence map›Paper›PMID 40032378›Full record

SynthesisBMJ open2025

Health literacy of primary caregivers of children with cerebral palsy in low- and middle-income countries: a systematic review.

Genevieve Lilian Perrins, Catherine King, Kousar Azhdari, Israt Jahan, Rosalie Power, Rashidul Hashan, Nadia Badawi, Gulam Khandaker

Abstract readSystematic Review
In one paragraph

Synthesis in BMJ open, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Genevieve Lilian PerrinsCentral Queensland Public Health Unit, Central Queensland Public Health Unit, Rockhampton, Queensland, Australia genevieve.perrins@health.qld.gov.au.ORCID http://orcid.org/0000-0003-3159-3286
Catherine KingThe University of Sydney School of Public Health, Sydney, New South Wales, Australia.
Kousar AzhdariFaculty of Health, Queensland University of Technology, Brisbane, Queensland, Australia.
Israt JahanCentral Queensland Public Health Unit, Rockhampton, Queensland, Australia.
Rosalie PowerTranslational Health Research Institute, University of Western Sydney, Penrith, New South Wales, Australia.
Rashidul HashanCentral Queensland Public Health Unit, Rockhampton, Queensland, Australia.
Nadia BadawiGrace Centre for Newborn Intensive Care, Children's Hosital at Westmead, Sydney, New South Wales, Australia.
Gulam KhandakerCentral Queensland Public Health Unit, Rockhampton, Queensland, Australia.ORCID http://orcid.org/0009-0004-7419-1142

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectiveWe aimed to synthesise existing literature on the health literacy of primary caregivers (PCGs) of children with cerebral palsy (CP) in low- and middle-income countries (LMICs).

designSystematic review informed by Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines. DATA SOURCES: Ovid MEDLINE, Ovid EMBASE, CINAHL via EBSCO, Scopus and Web of Science were searched from inception to January 2024. ELIGIBILITY CRITERIA: Original studies including observational or experimental data, examining health literacy and/or health literacy proxies using Optimising Health Literacy and Access domains as indicators (eg, education, social support, self-efficacy, health attitudes, reading and writing skills) in primary caregivers of children with CP in LMICs. DATA EXTRACTION AND SYNTHESIS: Data from included studies were systematically recorded using an Excel template, with information extracted independently by two reviewers. We used the Study Quality Assessment Tool developed by the National Health, Lung, and Blood Institute.

resultsThe systematic review yielded 2734 articles, with 15 eligible for inclusion. None used health literacy (HL) measurement tools, and there was limited reporting on specific HL domains. Studies spanned 11 LMICs across 5 major regions. PCGs, predominantly mothers, exhibited varying levels of service awareness, service utilisation and social support. Literacy levels significantly impacted HL proficiency, exposing a notable research gap in LMICs.

conclusionsThis study presents the first comprehensive analysis of health literacy among PCGs of children with CP in LMICs. Findings reveal a striking absence of tailored health literacy literature, impacting current considerations of PCGs' understanding and management of their child's condition. Additionally, challenges in social support, healthcare navigation and low literacy levels further hinder effective caregiving in LMICs.

Indexed as

CaregiversCerebral PalsyHealth LiteracyChildDeveloping CountriesHealth Knowledge, Attitudes, PracticeHumansSocial SupportCaregiversChildDevelopmental neurology & neurodisabilityHealth Literacy

Identifiers

PMID40032378
PMCPMC11877220

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.