ArticleJournal of evaluation in clinical practice2025
Transition and Life-Long Care for Adults With Cerebral Palsy: A Patient Group 'Too Hard to Impact!' Are We Still Sending Young People 'Off a Cliff'?
Article in Journal of evaluation in clinical practice, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
4 citing papers in PubMed.
- Retrospective analysis of temporalis muscle thickness as a biomarker of functional level in adults with cerebral palsy.Journal of pediatric rehabilitation medicine · 2026Article
- Age equality in UK healthcare policy and decision-making: a scoping review.BMC medical ethics · 2026Article
- REASON CP: a systems-based framework for clinical reasoning to support participation across the lifespan in childhood-onset neurodisability.Frontiers in public health · 2026Review
- Co-design of an intervention to enhance healthcare transition for adolescents and young adults with chronic medical conditions.npj health systems · 2025Article
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
objectivesAt Evelina London Children's Hospital, tertiary care is provided for children with Cerebral Palsy (CP) across the South East of England. An increasing number of adults with CP remain under the care of the children's hospital due to a lack of appropriate adult neurodisability services. This quality improvement project as part of a gap analysis regarding transition pathways for young adults with CP, aimed to explore the lived experience of young adults within our service, with respect to transition and care in adulthood.
methodsThis was a multi-methods design. Firstly, a bespoke questionnaire to young adults with CP and their families evaluated their experience of transition, access to services, challenges with care, and their needs from healthcare professionals (n = 46). Then, a focus group with parents of adults with CP (n = 4) and interviews with adults with CP (n = 5) informed design of an ideal transition pathway and adult service. The qualitative data were thematically analysed.
resultsFramework analysis of the questionnaire data was mapped against the International Classification of Functioning (ICF) with the following themes identified: Body structure and function: pain and anxiety; Activity: equality; accessibility and relationships; Participation: need for friendship and social opportunities, employment and education; Environmental factors: health services and providers; home environment and wider community; Personal factors: independence. Analysis of the focus group and interviews identified five main themes: Gradual and co-ordinated transition process; Co-ordination of care in adult services; Knowledge, skills and experience of professionals; Communication; and Worrying about the future.
conclusionsParticipants identified significant challenges with transition pathways and adult care. Annual reviews from healthcare professionals with expertise in CP should be offered to young adults to ensure early identification of health needs. Further research is needed to support business planning in development of appropriate adult services for adults with CP and ensure successful transition pathways.
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