Evidence map›Paper›PMID 40019020›Full record

ArticlePediatric pulmonology2025

A Joint Conversation: People With Cystic Fibrosis' Perception of Healthcare Teams' Knowledge, Comfort, and Barriers in Discussing Substance Use.

Sanaz Vaziri, Meghan E McGarry, Addison A Cuneo, Shaina M Willen, Kensho Iwanaga, Fatima Neemuchwala, Elizabeth R Gibb, Marilynn Chan, Ngoc P Ly

Abstract read
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In one paragraph

Article in Pediatric pulmonology, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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0citing papers in PubMed
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1 · What the graph read from it

What it found

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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

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Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

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No citing paper in PubMed yet.

4 · The record

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5 · Who and what money

Authors and funding

9 authors.

Sanaz VaziriDepartment of Pediatrics, University of California San Francisco, San Francisco, USA.
Meghan E McGarryDepartment of Pediatrics, University of Washington, Seattle, USA.ORCID http://orcid.org/0000-0002-8562-7018
Addison A CuneoDepartment of Pediatrics, University of California San Francisco, San Francisco, USA.ORCID http://orcid.org/0000-0002-8877-0071
Shaina M WillenDepartment of Pediatrics, University of California Davis, Sacramento, USA.
Kensho IwanagaDepartment of Pediatrics, University of California San Francisco, San Francisco, USA.
Fatima NeemuchwalaDepartment of Pediatrics, University of California San Francisco, San Francisco, USA.
Elizabeth R GibbDepartment of Pediatrics, University of California San Francisco, San Francisco, USA.
Marilynn ChanDepartment of Pediatrics, Kaiser Permanente, Bellflower, USA.
Ngoc P LyDepartment of Pediatrics, University of California San Francisco, San Francisco, USA.

Funding

Risk Factors For Worse Lung Function In Latinos With Cystic FibrosisK23HL133437 · NHLBI · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI MCGARRY, MEGHAN ELIZABETH · 2018 to 2023
$1.0M
Dr. Vaziri is supported by CFF First and Second Year Clinical Fellowship Grant (VAZIRI20B0) and Health Resources & Services Administration (HRSA-20-040-172184); Dr. McGarry is supported by the NHLBI (1K23HL133437-01A1) and Cystic Fibrosis Foundation Therapeutics (MCGARR16A0, 005294Y5123). Dr. Iwanaga is supported by Health Resources & Services Administration (HRSA-20-040-172184); Dr. Huang is supported by Cystic Fibrosis Foundation (003789Y7122). Dr. Ly is supported by Cystic Fibrosis Foundation (003789Y7122, 000410CC323): Cystic Fibrosis Foundation Therapeutics (003007Y121); Health Resources & Services Administration (HRSA-20-040-172184); Funding sources had no involvement.NHLBI NIH HHS K23 HL133437
6 · The paper itself

Abstract

backgroundSubstance use has increased among people with CF (pwCF), yet communication about use remains understudied between pwCF and their healthcare providers.

objectiveInvestigate pwCF's perceptions regarding their healthcare team's discussions surrounding substance use, comfort level discussing such usage, and barriers encountered during these discussions.

methodsThis cross-sectional study used a one-time electronic survey to assess communication regarding substance use between pwCF aged 13 years and older and their CF healthcare team.

resultsOf 226 participants, 74% (n = 167) reported being asked about marijuana, 57% (n = 128) about CBD, 70% (n = 150) about e-cigarettes, and 88% (n = 189) about cigarettes by their CF healthcare team. Fewer providers discussed the risks and benefits of each substance: 47% (n = 107) for marijuana, 40% (n = 90) for CBD, 44% (n = 99) for e-cigarettes, and 61% (n = 138) for cigarettes. Provider knowledge was rated higher for cigarettes and e-cigarettes compared to marijuana and CBD. Most participants felt comfortable discussing substance use, though a minority expressed discomfort, mainly due to concerns about documentation in medical records and perceived lack of support.

conclusionThis study highlights variability in communication between pwCF and their healthcare teams regarding substance use, particularly when it comes to marijuana and CBD. The findings suggest a need for standardized guidelines and educational resources to improve recreational substance screening and discussion in CF clinical care, especially given the changing landscape of marijuana regulations and increasing use among pwCF.

Indexed as

CommunicationCystic FibrosisHealth Knowledge, Attitudes, PracticePatient Care TeamSubstance-Related DisordersAdolescentAdultCross-Sectional StudiesElectronic Nicotine Delivery SystemsFemaleHumansMaleMiddle AgedPerceptionSurveys and QuestionnairesYoung Adultcbdcystic fibrosismarijuanasubstance usevaping

Identifiers

PMID40019020
PMCPMC13119649

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.