Evidence map›Paper›PMID 40018060›Full record

ArticleAutism in adulthood2024

"It Was Like the Final Piece in the Puzzle for Me": A Qualitative Study on the Experiences of Autistic Women Initially Diagnosed with Borderline Personality Disorder.

Trevor Powell, Jennie Parker, Hazel Kitson, Maja Rogalewski

Abstract read
In one paragraph

Article in Autism in adulthood, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Review
  3. Article
  4. Article
  5. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Trevor PowellDepartment of Neuropsychology, Berkshire Healthcare NHS Trust, The Erleigh Road Clinic, Reading, United Kingdom.ORCID https://orcid.org/0000-0002-7218-6065
Jennie ParkerBerkshire NHS Foundation Trust, Reading, United Kingdom.ORCID https://orcid.org/0000-0001-5179-729X
Hazel KitsonBerkshire NHS Foundation Trust, Reading, United Kingdom.
Maja RogalewskiTees Esk and Wear Valleys, NHS Foundation Trust, Darlington, United Kingdom.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: Women who self-harm and experience complex mental health difficulties are frequently diagnosed with borderline personality disorder (BPD), also known as emotionally unstable personality disorder. Emerging research suggests that self-harm may often be better explained through the lens of autism, and that greater consideration should be given to the clients' motivations for self-harm. How time alone is experienced may also be a differentiating factor. The objective of this study was to investigate individuals' perceptions of a change in diagnosis, experiences of self-harm, and fear of real or imagined abandonment, with the aim of improving the accuracy of initial diagnosis. Method: Eight women, first diagnosed with BPD, then autism, and with a history of self-harm and multiple admissions to a psychiatric hospital, underwent a semistructured interview, which was recorded, transcribed, and analyzed using thematic analysis. Results: Three main themes and 11 subthemes were identified. Theme one centers around participants' "Journey through the diagnostic and therapeutic jungle." Theme two is entitled "Self-harm as a developed and systematic way of coping." Theme three is entitled "Alone is not abandoned." Conclusions: Better awareness and understanding of the subtle differences between BPD and autism are essential, as misdiagnosis leads to misinformed treatments, which are often contraindicative. Recognition of these specific, differentiating traits is most evident with a detailed neurodevelopmental history. This study suggests two potential factors for consideration in a neurodevelopmental history: first, the triggers and functions of self-harm, which often starts early in childhood, and second, limited awareness or absence of feelings of fear of abandonment alongside contentment with spending time alone.

Indexed as

autismmisdiagnosispersonality disorderself-harmwomen

Identifiers

PMID40018060
PMCPMC11861059

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.