ArticleJournal of racial and ethnic health disparities2026
"Hospice was Created by the KKK"-Black Americans' Perspectives on Hospice Care.
Article in Journal of racial and ethnic health disparities, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04458090 (Underutilization of Hospice in Older African Americans), which is not on this map. Cited by 1 paper.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Underutilization of Hospice in Older African Americans
Who cites it
1 citing paper in PubMed.
- Black and White older adults' end-of-life experiences: does hospice use mitigate racial disparities?The journals of gerontology. Series B, Psychological sciences and social sciences · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
Abstract
backgroundMisperceptions of hospice persist in communities of color. This study explored what Black Americans understand about and how they describe hospice care. The goal was to determine if older Black Americans can accurately describe hospice and to explore potential barriers and facilitators to hospice enrollment.
methodsA content analysis of qualitative data collected in a larger mixed-methods study. Participants responded to the written prompt, "In your own words describe hospice care" with no further instructions. Recruitment occurred from community settings between May 2019 to March 2020. We recruited 144 participants who were at least 65 years old and self-identified as Black or African American. The written narratives were analyzed to determine how accurately participants described: (1) hospice care and eligibility, (2) location of services, (3) services provided, and (4) goals of care.
resultsParticipant ages ranged from 65 to 97 years (M = 74.62, SD = 6.94). Participants were predominately female (81%) and widowed (33%). Participants accurately described hospice care and eligibility (80%), goals of hospice (89%), and services hospice provides (83%). Only 39% of participants correctly identified locations of hospice services. Additionally, some participants (8%) reported certain myths and conspiracies pertaining to hospice.
conclusionsThis study found that older Black Americans accurately describe hospice care and eligibility, goals of care, and the services provided by hospice. However, most were unable to accurately describe the location of hospice services and a few reported myths and conspiracies. The study highlights areas to improve communication about hospice which may reduce some of the barriers to hospice enrollment in Black Americans.
trial registrationClinicalTrials.gov Identifier: NCT04458090.
Indexed as
Identifiers
40014286What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.