Evidence map›Paper›PMID 40012359›Full record

ArticleACR open rheumatology2025

Development and Pilot Testing of a Patient-Centered Reproductive Decision Aid for Pregnancy-Capable People With Rheumatic Diseases.

Mehret Birru Talabi, Megan E B Clowse, Kaleab Abebe, Susan J Blalock, Lisa S Callegari, Traci M Kazmerski, Raelynn O'Leary, Ashley Deal, Catherine Wright, Leslie E Pierce and 4 more

Abstract read
In one paragraph

Article in ACR open rheumatology, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Review
  2. A 20-year reflection on women in rheumatology.Nature reviews. Rheumatology · 2025
    Article
  3. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors.

Mehret Birru TalabiUniversity of Pittsburgh and University of Pittsburgh School of Medicine, Pittsburgh, Pennsylvania.ORCID https://orcid.org/0000-0001-5049-4932
Megan E B ClowseDuke University, Durham, North Carolina.ORCID https://orcid.org/0000-0002-8579-3470
Kaleab AbebeUniversity of Pittsburgh, Pittsburgh, Pennsylvania.
Susan J BlalockUniversity of North Carolina Eshelman School of Pharmacy, Chapel Hill.ORCID https://orcid.org/0000-0002-8750-3385
Lisa S CallegariUniversity of Washington School of Medicine, Seattle.
Traci M KazmerskiUniversity of Pittsburgh, Pittsburgh, Pennsylvania.
Raelynn O'LearyCarnegie Mellon University, Pittsburgh, Pennsylvania.
Ashley DealCarnegie Mellon University, Pittsburgh, Pennsylvania.
Catherine WrightUniversity of Pittsburgh, Pittsburgh, Pennsylvania.
Leslie E PierceUniversity of Pittsburgh, Pittsburgh, Pennsylvania.
Olivia M StranskyUniversity of Pittsburgh, Pittsburgh, Pennsylvania.
Goutham LakkarajuUniversity of Pittsburgh School of Medicine, Pittsburgh, Pennsylvania.
Swetha JastiUniversity of Pittsburgh School of Medicine, Pittsburgh, Pennsylvania.
Sonya BorreroUniversity of Pittsburgh, Pittsburgh, Pennsylvania.

Funding

Investigating Pathways to Optimal Reproductive Outcomes Among Women with Rheumatic DiseasesK23AR075057 · NIAMS · UNIVERSITY OF PITTSBURGH AT PITTSBURGH · PI TALABI, MEHRET BIRRU · 2020 to 2024
$842k
NIAMS NIH HHS K23 AR075057NIAMS NIH HHS K23AR075057-04
6 · The paper itself

Abstract

objectiveAlthough women with rheumatic and musculoskeletal diseases (RMDs) are at an elevated risk for adverse pregnancy and perinatal outcomes, some report that they lack access to resources that support informed reproductive decision-making. We developed MyVoice:Rheum, a web-based decision aid to support women with RMDs in reproductive decision-making. We conducted a pilot trial to assess feasibility and acceptability of MyVoice:Rheum and to assess its preliminary effectiveness compared to a freely available online pamphlet about reproductive and RMDs.

methodsUsing a parallel-arm randomized pilot trial design, we assigned women aged 18 to 44 years with RMDs in a 3:1 ratio to receive either MyVoice:Rheum or the control pamphlet immediately before a rheumatology clinical encounter. Quantitative and qualitative measures of feasibility, acceptability, and usability were assessed among MyVoice:Rheum users. We evaluated the preliminary effectiveness of MyVoice:Rheum in prompting family planning discussions as compared to pamphlet users, as well as its effects on users' reproductive knowledge and/or communication self-efficacy with rheumatologists.

resultsWe enrolled MyVoice:Rheum users (n = 31) and controls (n = 9) in the pilot study. MyVoice:Rheum users scored the tool as feasible, acceptable, and easy to use. Approximately 61% of MyVoice:Rheum users and 44% of controls had family planning discussions with their rheumatologists. MyVoice:Rheum users demonstrated increases in self-efficacy and knowledge scores after the intervention.

conclusionIn pilot testing, MyVoice:Rheum was feasible, acceptable, and usable to women with RMDs. Preliminary findings suggest that MyVoice:Rheum may increase family planning discussions in the rheumatology context and augment patients' reproductive knowledge and self-efficacy; these findings should be confirmed in a future full-scale study.

Identifiers

PMID40012359
PMCPMC11865636

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LicenceCC BY-NC-ND
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.