Evidence map›Paper›PMID 40011256›Full record

ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2025

Exploring motivations of peer supporters for caregivers of patients with hematological malignancies-a qualitative study.

Cæcilie Borregaard Myrhøj, Iben Husted Nielsen, Camilla Louise Visler, Kristina Holmegaard Nørskov, Karin Piil, Mary Jarden

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Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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1 · What the graph read from it

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2 · The registry

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3 · Its place in the literature

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4 · The record

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5 · Who and what money

Authors and funding

6 authors.

Cæcilie Borregaard MyrhøjDepartment of Hematology, Copenhagen University Hospital, Copenhagen, Denmark. caecilie.borregaard.myrhoej@regionh.dk.ORCID http://orcid.org/0000-0002-9726-8702
Iben Husted NielsenDepartment of Hematology, Copenhagen University Hospital, Copenhagen, Denmark.ORCID http://orcid.org/0000-0001-7618-3729
Camilla Louise VislerDepartment of Hematology, Copenhagen University Hospital, Copenhagen, Denmark.ORCID http://orcid.org/0000-0001-5672-1323
Kristina Holmegaard NørskovDepartment of Hematology, Copenhagen University Hospital, Copenhagen, Denmark.ORCID http://orcid.org/0000-0002-1055-9161
Karin PiilDepartment of Oncology, Copenhagen University Hospital, Copenhagen, Denmark.ORCID http://orcid.org/0000-0001-7972-4674
Mary JardenDepartment of Hematology, Copenhagen University Hospital, Copenhagen, Denmark.ORCID http://orcid.org/0000-0003-3040-8384

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeSocial support interventions, particularly peer support from former family caregivers, offer unique assistance to caregivers of newly diagnosed patients. Since voluntary peer support is driven by personal choice, understanding the motivations for participating and how motivation evolves over time is essential. This study explores the motivations for becoming a peer support provider for family caregivers of patients with hematological malignancies and how motivation changes over time.

methodsThis qualitative study encompasses 18 semi-structured interviews with family caregivers providing peer support (N = 11) at two time points: (1) just after certification as peer supporters but prior to starting the peer support program and (2) at the 6-week mark of their 12-week peer support program. Interpretive phenomenological analysis was used to analyze the data.

resultsMotivation for participating in a voluntary peer-to-peer support program as a peer support provider center on four main themes: "Driven by past experiences", "Moral obligation is intrinsic to identity", "Meaningful use of personal experiences", and "Guiding new caregivers". Motivation was influenced during the support program, particularly by the presence or absence of feedback from family caregivers and by participation in network meetings with other peer support providers.

conclusionsThis study emphasizes the importance of networking meetings for family caregiver peer support providers, as they facilitate exchange of knowledge and insights and discussion of challenges and rewards and provide an ongoing support and motivation. It also highlights the untapped potential of volunteering to provide unique social support benefiting both the family caregiver recipient of support and the support provider.

Indexed as

CaregiversHematologic NeoplasmsMotivationPeer GroupSocial SupportAdultAgedFemaleHumansInterviews as TopicMaleMiddle AgedQualitative ResearchHematological malignanciesMotivationsPeer support

Identifiers

PMID40011256
PMCPMC11865170

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.