Evidence map›Paper›PMID 40003225›Full record

ArticleChildren (Basel, Switzerland)2025

The Experience of Caring for a Medically Complex Child in the Neonatal Intensive Care Unit: A Qualitative Study of Parental Impact.

Natascia Bertoncelli, Martina Buttera, Elisa Nieddu, Alberto Berardi, Licia Lugli

Abstract read
In one paragraph

Article in Children (Basel, Switzerland), 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Article
  2. Article
  3. Review
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Natascia BertoncelliNeonatal Intensive Care Unit, Women's and Children's Health Department, University Hospital of Modena, 41100 Modena, Italy.
Martina ButteraDepartment of Medical and Surgical Sciences for Mother, Children and Adults, Postgraduate School of Pediatrics, University of Modena and Reggio Emilia, 41124 Modena, Italy.
Elisa NiedduNeonatal Intensive Care Unit, Women's and Children's Health Department, University Hospital of Modena, 41100 Modena, Italy.
Alberto BerardiNeonatal Intensive Care Unit, Women's and Children's Health Department, University Hospital of Modena, 41100 Modena, Italy.ORCID 0000-0002-3534-7499
Licia LugliNeonatal Intensive Care Unit, Women's and Children's Health Department, University Hospital of Modena, 41100 Modena, Italy.ORCID 0000-0002-2149-0083

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundParents of children with life-limiting or life-threatening illnesses and/or medical complexity experience intense stress and pain soon after the birth and lifelong. Understanding parents' experiences and coping strategies is the prerequisite to provide tailored support to families.

methodsSemi-structured interviews were administered to the parents of children with medical complexity admitted to the Neonatal Intensive Care Unit (NICU) of Modena between October 2016 and January 2024. The interview was developed based on three time points: birth, hospitalization, and discharge, focusing on parents' experiences, emotions, and communication with healthcare professionals. The interviews were analyzed using the template analysis.

Indexed as

children with medical complexityparents’ experiencesrelationships with healthcare professionals

Identifiers

PMID40003225
PMCPMC11854162

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.