Evidence map›Paper›PMID 40003222›Full record

ArticleChildren (Basel, Switzerland)2025

Exploring Distinct Profiles in Paediatric Bioethics-An Analysis of Proactive and Reactive Approaches by Adults.

Erika Rigotti, Marco Zaffanello, Sara Patuzzo Manzati, Giulia Adele Dinicola, Giorgio Piacentini, Giulia Rodella, Lucia Pozzuoli, Giovanni De Manzoni

Abstract read
In one paragraph

Article in Children (Basel, Switzerland), 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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1 · What the graph read from it

What it found

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2 · The registry

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3 · Its place in the literature

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4 · The record

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5 · Who and what money

Authors and funding

8 authors.

Erika RigottiDepartment of Paediatrics, Woman's & Child's University Hospital, I-37126 Verona, Italy.ORCID 0009-0005-1639-8951
Marco ZaffanelloDepartment of Surgery, Dentistry, Gynecology and Paediatrics, University of Verona, I-37129 Verona, Italy.ORCID 0000-0002-8659-5505
Sara Patuzzo ManzatiDepartment of Surgery, Dentistry, Gynecology and Paediatrics, University of Verona, I-37129 Verona, Italy.
Giulia Adele DinicolaCleveland Center for Bioethics, Cleveland Clinic, Cleveland, OH 44195, USA.ORCID 0000-0001-5217-7957
Giorgio PiacentiniDepartment of Surgery, Dentistry, Gynecology and Paediatrics, University of Verona, I-37129 Verona, Italy.
Giulia RodellaDepartment of Paediatrics, Woman's & Child's University Hospital, I-37126 Verona, Italy.
Lucia PozzuoliDepartment of Paediatrics, Woman's & Child's University Hospital, I-37126 Verona, Italy.
Giovanni De ManzoniDepartment of Surgery, Dentistry, Gynecology and Paediatrics, University of Verona, I-37129 Verona, Italy.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

BACKGROUND/

objectivesThe field of paediatric bioethics addresses ethical issues in paediatric care, where parental authority often guides medical decisions, but children's preferences should also be considered. Promoting ethical awareness among minors can help them understand complex issues. This study aimed to analyse how sociodemographic, educational, and experiential factors shape adult perspectives on paediatric bioethical issues, particularly concerning pain and death.

methodsA questionnaire was developed to collect adult views of bioethical issues. The online questionnaire was disseminated via e-mail or WhatsApp. It started with an initial group of known individuals and then expanded hierarchically to include contacts of friends. Participants completed an online questionnaire, and data were analysed using SPSS version 22.0 for Windows. Clustering analysis identified two distinct groups.

resultsThis research focused on Italian adults (N = 889) aged 18 and over. Cluster 1, predominantly female (78.3%) and more highly educated (38.6% with postgraduate degrees), exhibited greater experience with paediatric bioethical issues (81.1%). This group favoured a collaborative approach, supporting shared training among adults (92.3%) and advocating for gradually addressing bioethical issues during childhood (84.3%). Cluster 2, with a higher proportion of males (31.5%) and parents (75.1%), showed lower educational levels (3.0% with middle school education) and less experience with bioethical concerns (93.5%). This group preferred a reactive, situation-specific approach to these issues.

conclusionsThis study showed two distinct adult profiles regarding how they approach paediatric bioethics. The first group adopts a preventive and collaborative strategy, while the second group is more reactive and situation-driven. These findings can guide the development of tailored educational programmes to improve discussions about sensitive topics such as pain, incurability, and death in paediatric care.

Indexed as

bioethicschildrenend of lifemedical ethicspaediatric bioethicspalliative carequestionnairesurvey

Identifiers

PMID40003222
PMCPMC11854856

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.