ArticleJournal of cardiovascular development and disease2025
Beyond Survival: Assessing Quality of Life, Activity Level, and Ethnic Diversity in Aortic Dissection Survivors.
Article in Journal of cardiovascular development and disease, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.
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Who cites it
3 citing papers in PubMed.
- Co-creating a patient-driven digital monitoring agenda for thoracic aortic disease: a multiphase qualitative study.BMJ open · 2026Article
- From survival to lifelong care: The role of patient organisations in aortic dissection.American heart journal plus : cardiology research and practice · 2026Article
- Exploring ethnic differences in the perioperative course of thoracic aortopathy.Frontiers in cardiovascular medicine · 2025Article
Corrections and comments
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Authors and funding
11 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundAn acute aortic dissection (AAD) is a highly lethal condition that demands immediate medical intervention. Survivors often face significant long-term challenges. While immediate survival remains a critical focus in acute care settings, little is known about long-term results, especially with regard to activity levels, post-operative quality of life, and the impact of cultural and ethnic characteristics on recovery. Using data from the Dutch National Aortic Dissection Survivor's Day, this study examines QoL, activity levels, and ethnic diversity among survivors.
methodsAll patients (
resultsThe mean age of the participants was 59.5 years, with 37.8% identifying as women. Ethnically, 88.9% identified as Dutch. The majority reported good health (mean score of 73/100). However, there was a considerable variation in QoL scores. On average, 22.2% of our study population reported moderate or greater problems across all dimensions, compared to 5.5% in the normative sample. Activity levels were mostly low to moderate, and no significant differences in QoL were found based on activity levels. Sleep quality was generally good.
conclusionsOur study reveals significant limitations in QoL among AAD survivors. This emphasizes the significance of developing a multimodal rehabilitation program focused on addressing current gaps in recovery. Ultimately, this will enhance overall care following AAD. Future research should focus on assessing long-term QoL.
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