Evidence map›Paper›PMID 39994914›Full record

ArticleAutism research : official journal of the International Society for Autism Research2025

Waiting Times and Influencing Factors in Children and Adults Undergoing Assessment for Autism, ADHD, and Other Neurodevelopmental Differences.

Donald Maciver, Anusua Singh Roy, Lorna Johnston, Marie Boilson, Eleanor Curnow, Victoria Johnstone-Cooke, Marion Rutherford

Abstract read
In one paragraph

Article in Autism research : official journal of the International Society for Autism Research, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers.

0numbers the graph read from it
0cells of the map it votes in
14citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

14 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Donald MaciverNational Autism Implementation Team, School of Health Sciences, Queen Margaret University, Musselburgh, UK.ORCID 0000-0002-6173-429X
Anusua Singh RoyNational Autism Implementation Team, School of Health Sciences, Queen Margaret University, Musselburgh, UK.
Lorna JohnstonNational Autism Implementation Team, School of Health Sciences, Queen Margaret University, Musselburgh, UK.
Marie BoilsonNational Autism Implementation Team, School of Health Sciences, Queen Margaret University, Musselburgh, UK.
Eleanor CurnowNational Autism Implementation Team, School of Health Sciences, Queen Margaret University, Musselburgh, UK.
Victoria Johnstone-CookeNational Autism Implementation Team, School of Health Sciences, Queen Margaret University, Musselburgh, UK.ORCID 0000-0002-0162-1226
Marion RutherfordNational Autism Implementation Team, School of Health Sciences, Queen Margaret University, Musselburgh, UK.

Funding

Scottish Government
6 · The paper itself

Abstract

This study explored waiting times and the factors influencing them in child and adult populations undergoing assessment for autism, ADHD, and other neurodevelopmental differences. The analysis focused on a retrospective review of 408 cases with assessments completed between October 2021 and May 2022, conducted by 30 diagnosing teams in Scotland. Data included age, final diagnosis, demographics, medical and developmental history, contact frequency, and assessment service adherence to best-practice standards. Waiting times were calculated, and relationships were analyzed using linear regression. Median waiting times were 525 days (IQR 329-857) for children/adolescents and 252 days (IQR 106-611) for adults. Only 20% of children's and 47% of adult assessments met the proposed 252-day diagnostic time target. Autism and ADHD were the most common diagnoses. Receiving > 1 neurodevelopmental diagnosis on completion was uncommon. Demographic factors did not significantly affect waiting times. Children/adolescents with more complex developmental and medical histories experienced longer waits (100.3 weeks vs. 67.7 weeks; p < 0.001), while adults with similar histories had shorter waits (32.7 weeks vs. 57.4 weeks; p = 0.016). Adults with ADHD experienced longer waits than autistic adults (63.4 weeks vs. 38.6 weeks, p = 0.002). Adherence to best-practice quality standards was associated with shorter waits for children (β = 0.27, p = 0.002), but the relationship between standard adherence at different stages and for adults was less clear. More frequent appointments correlated with shorter adult waits (33.7 weeks vs. 59.2 weeks, p = 0.015). Gender distribution was balanced among adults, but children's services included more boys. The study highlights long waits and the need for improvement in processes.

Indexed as

Attention Deficit Disorder with HyperactivityAutistic DisorderNeurodevelopmental DisordersWaiting ListsAdolescentAdultChildChild, PreschoolFemaleHumansMaleMiddle AgedRetrospective StudiesScotlandTime FactorsYoung Adultassessmentautismdiagnosisneurodevelopmentalpathway

Identifiers

PMID39994914
PMCPMC12015800

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.