Evidence map›Paper›PMID 39994745›Full record

ArticleHealth research policy and systems2025

Consumer and community involvement: implementation research for impact (CCIRI) - implementing evidence-based patient and public involvement across health and medical research in Australia - a mixed methods protocol.

Ashley H Ng, Sandra Reeder, Angela Jones, Ainslie Cahill, Debra Langridge, Susanne Baker, Leah Heiss, Alan Dorin, Helena Teede

Abstract read
In one paragraph

Article in Health research policy and systems, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed.

  1. Review
  2. Towards Meaningful Consumer and Community Involvement in Health Research: A Qualitative Study of Consumer and Researcher Experiences.Health expectations : an international journal of public participation in health care and health policy · 2026
    Article
  3. Co-Production Experiences in Practice From Funding to Implementation: Co-Production Experiences of Academics and Consumers in Real-World Practice.Health expectations : an international journal of public participation in health care and health policy · 2026
    Article
  4. Article
  5. Article
  6. Article
  7. Article
  8. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Ashley H NgMonash Centre for Health Research and Implementation, Monash University and Monash Health, Melbourne, VIC, Australia. Ashley.ng@monash.edu.
Sandra ReederMonash Centre for Health Research and Implementation, Monash University and Monash Health, Melbourne, VIC, Australia.
Angela JonesMonash Partners Academic Health Science Centre, Melbourne, VIC, Australia.
Ainslie CahillMonash Partners Academic Health Science Centre, Melbourne, VIC, Australia.
Debra LangridgeWestern Australia Health Translation Network, the University of Western Australia, Perth, Australia.
Susanne BakerMonash Centre for Health Research and Implementation, Monash University and Monash Health, Melbourne, VIC, Australia.
Leah HeissMonash Art Design and Architecture, Monash University, Melbourne, VIC, Australia.
Alan DorinFaculty of Information Technology, Monash University, Melbourne, VIC, Australia.
Helena TeedeMonash Centre for Health Research and Implementation, Monash University and Monash Health, Melbourne, VIC, Australia.

Funding

Medical Research Future Fund, Australia MRF2019278
6 · The paper itself

Abstract

backgroundWithin Australia, there is increasing recognition of the importance and value of patient and public involvement, or consumer and community involvement (CCI), in health and medical research and healthcare improvement. Despite this and policy mandates, there has been little behavioural and systems change to embed and support CCI. Often, this is relegated to tokenistic gestures rather than authentic partnerships. The aim of this national project is to use evidence-generated knowledge co-led by consumers, community members, researchers and clinicians to embed CCI in health and medical research and healthcare improvement.

methodsThe Consolidated Framework for Implementation Research and the Learning Health System framework underpin the project to facilitate an iterative process to change systems and individual behaviour towards adoption of CCI in health and medical research and healthcare improvement. Key stakeholder groups include research translation centres, funding bodies, clinicians, professional staff involved in healthcare improvement, researchers and consumers and community members. To understand the attitudes, knowledge, beliefs, behaviours, system barriers and facilitators around CCI in health and medical research and healthcare improvement, semi-structured interviews and surveys will be conducted across key stakeholder groups. Template analysis and descriptive statistics will be used to report data from the national survey respectively prior to triangulation of data. Findings will be reported through traditional scientific outputs such as conference presentations and peer-reviewed publications. Other anticipated outputs include policy briefs, organizational implementation toolkits and resources and a co-designed digital knowledge hub to support individuals with implementation and scale up across stakeholders. DISCUSSION: This study will build on considerable stakeholder engagement and prior priority-setting and includes broad and detailed consideration of perspectives from diverse stakeholders at a national level. Robust methodological frameworks, co-design and partnership with stakeholders will be used to inform resources to support systems change to facilitate CCI in health and medical research and healthcare improvement. Ethics approval was obtained from Monash Health (RES-23-0000-275Q).

Indexed as

Biomedical ResearchCommunity ParticipationPatient ParticipationAustraliaEvidence-Based MedicineHealth Services ResearchHumansQuality ImprovementResearch DesignStakeholder ParticipationTranslational Research, BiomedicalCo-designConsumer and community involvementImplementation scienceNetworkProtocolPublic and patient involvement

Identifiers

PMID39994745
PMCPMC11849185

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.