ArticleDigital health
A user-centred website to support advance care planning for people with dementia and their family caregivers: Development and usability study.
Article in Digital health. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
2 citing papers in PubMed.
- Cocreation of a Digital Tool for Proactive End-of-Life Communication: Protocol for a Participatory Action Research Project.JMIR research protocols · 2026Article
- From inferring preferences to enabling choice: potentials of digital tools to improve substitute decision-making.Frontiers in digital health · 2026Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Objective: Advance care planning (ACP) is a dynamic communication process about future care preferences. We aimed to develop and test an ACP support website for people with dementia and their family caregivers. Methods: We adopted a user-centred design process to develop and test the ACP support website. A content specification phase included needs assessment, evidence synthesis and translation into preliminary content. A creative design phase included storyboarding, iterative prototyping, and usability testing. People with dementia and family caregivers engaged in usability testing across four iterations, using System Usability Scale questionnaires, and think-aloud and semi-structured interviews. An advisory group with people with dementia, family caregivers, and diverse regional stakeholders was involved. Descriptive statistics and qualitative framework analysis were applied. Results: Website goals were: providing ACP information and facilitating ACP conversations. A 'what matters most' approach (i.e. enabling users to reflect on 'what matters most' in the present and the future) and non-linear navigation were favoured. We tested the website with 17 people with dementia and 26 family caregivers. Feedback addressed design, navigation and content. Usability scores of 76.4 for family caregivers and 81.3 for people with dementia were achieved. Family caregivers and people with dementia highlighted the value of information and interactive ACP tools, the need for language simplification and harmonised layout. People with dementia experienced challenges in using interactive tools. Conclusion: The user-centred development process, involving diverse stakeholders, led to the development of an ACP support website deemed usable and useful. Future evaluation should focus on acceptability, feasibility and effectiveness of the ACP support website.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.