Evidence map›Paper›PMID 39990034›Full record

ArticlePaediatrics & child health2024

Patient-reported outcome measures for paediatric gender-affirming care: A systematic review.

Liam Jackman, Cynthia Chan, Chloë Jacklin, Eve Deck, Ann C Lee, Melissa Stepney, Conrad Harrison, Abhilash Jain, Jeremy Rodrigues, Rakhshan Kamran

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Paediatrics & child health, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Liam JackmanTemerty Faculty of Medicine, University of Toronto, Toronto, Ontario.
Cynthia ChanDepartment of Family Medicine, University of Ottawa, Ottawa, Ontario.
Chloë JacklinMedical Sciences Division, University of Oxford, Oxford, UK.ORCID https://orcid.org/0000-0001-7494-9727
Eve DeckDepartment of Family Medicine, Western University, London, Ontario.
Ann C LeeFaculty of Medicine, University of Ottawa, Ottawa, Ontario.
Melissa StepneyDepartment of Psychiatry, University of Oxford, Oxford, UK.
Conrad HarrisonNuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Sciences, University of Oxford, Oxford, UK.
Abhilash JainNuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Sciences, University of Oxford, Oxford, UK.
Jeremy RodriguesWarwick Clinical Trials Unit, University of Warwick and Department of Plastic Surgery, Stoke Mandeville Hospital, Buckinghamshire Healthcare NHS Trust, Aylesbury, UK.
Rakhshan KamranNuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Sciences, University of Oxford, Oxford, UK.ORCID https://orcid.org/0000-0003-4298-4848

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Objectives: Patient needs must be comprehensively measured to offer paediatric gender-affirming care in line with clinical standards. Patient-reported outcome measures (PROMs) are self-report tools that measure outcomes deemed to be of importance to patients. PROMs may assess a single outcome or multiple outcomes simultaneously, such as symptoms, functional ability, and quality of life. This study aims to identify PROMs for paediatric gender-affirming care. Methods: This systematic review is PRISMA-compliant and was prospectively registered on PROSPERO (CRD42023461959). Six databases were searched: PubMed, Embase, MEDLINE, PsycINFO, CINAHL, and Web of Science from inception to December 16, 2022. Articles meeting the following criteria were included: 1) Original article; 2) Administers a formally-developed PROM; 3) Focuses on gender-affirming care; and 4) Focuses on paediatric populations. Screening and data extraction occurred independently and in duplicate. Data extracted include study/demographic information, and details of PROM used. Results: In total, 20 articles were included, representing a total of 5793 paediatric patients undergoing gender-affirming care. Most studies (13, 65%) focused on hormonal gender-affirming care. A total of 38 different PROMs for paediatric gender-affirming care were identified, ranging from 4 to 120 items each (mean 23 items; median 14 items). Most PROMs (n = 22) measured psychological functioning, with eight PROMs measuring quality of life, and three PROMs measuring gender-related concepts (i.e., gender dysphoria/euphoria). Commonly used PROMs include the Utrecht Gender Dysphoria Scale (n = 4; 20%), Body Image Scale (n = 5;25%), and Youth Self-Report (n = 8; 40%). Conclusions: A total of 38 PROMs were identified measuring a range of concepts for paediatric gender-affirming care.

Indexed as

Gender identityHealth services for transgender personsPatient-reported outcome measuresTransgender persons

Identifiers

PMID39990034
PMCPMC11840252

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.