Evidence map›Paper›PMID 39988353›Full record

ArticleCardiology in the young2025

Interstage feeding and caregiver impact on single ventricle patients.

Nashifa H Momin, Jennifer L Nelson, Camille Steiden, Nicole Coolidge, Alaa Aljiffry, Meg Simione

Abstract read
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Article in Cardiology in the young, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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1 · What the graph read from it

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2 · The registry

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3 · Its place in the literature

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4 · The record

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5 · Who and what money

Authors and funding

6 authors.

Nashifa H MominRehabilitation Services, Children's Healthcare of Atlanta, Atlanta, GA, USA.ORCID https://orcid.org/0000-0001-6376-2246
Jennifer L NelsonRehabilitation Services, Children's Healthcare of Atlanta, Atlanta, GA, USA.
Camille SteidenRehabilitation Services, Children's Healthcare of Atlanta, Atlanta, GA, USA.
Nicole CoolidgeDepartment of Pediatrics, Division of Cardiology, Children's Healthcare of Atlanta, Atlanta, GA, USA.
Alaa AljiffryDepartment of Pediatrics, Division of Cardiology, Children's Healthcare of Atlanta, Atlanta, GA, USA.
Meg SimioneDivision of General Academic Pediatrics, Department of Pediatrics, Mass General for Children, USA.

Funding

Adapting a pediatric weight management program for implementation via telehealthK23HL161447 · NHLBI · UNIVERSITY OF RHODE ISLAND · PI Meg Simione · 2022 to 2026
$709k
NHLBI NIH HHS K23 HL161447
6 · The paper itself

Abstract

backgroundThe interstage period is a critical phase for single ventricle infants due to their fragile cardiovascular state. Infants often experience medical and feeding challenges during this period, resulting in caregiver stress. We completed a quality improvement project at Children's Healthcare of Atlanta to understand these challenges to inform targeted interventions.

methodsThis single-center project included a medical chart review and a cross-sectional caregiver survey. Data were collected on patient and caregiver demographics and clinical variables. Feeding outcomes were assessed using the Pediatric Functional Oral Intake Scale. Caregiver impact was measured using the Feeding/Swallowing Impact Survey.

resultsThe project included 15 single ventricle patients with a mean (standard deviation) age of 151.73(25.92) days at the time of the second-stage palliation. Forty percent of patients experienced at least one readmission, primarily due to feeding intolerance (20%) and desaturations (26.7%). Milk protein allergy (26.9%) was the most common medical complication, followed by interstage unplanned reinterventions. Pediatric Functional Oral Intake Scale scores demonstrated that 33% consumed minimal volumes or no oral intake at the time of the bidirectional Glenn, and 93.3% of patients did not receive outpatient feeding services during the interstage. Caregiver stress scores resulted in mean scores (standard deviation) of 2.23(1.54), with the highest impact on daily activities. All caregivers affirmed the need for a dedicated multidisciplinary clinic.

conclusionThe interstage period for single ventricle patients poses significant medical and feeding challenges, resulting in caregiver stress. Comprehensive, multidisciplinary feeding support during the interstage period may improve patient outcomes and alleviate caregiver burden.

Indexed as

CaregiversFontan ProcedureHeart VentriclesStress, PsychologicalCross-Sectional StudiesFemaleHumansInfantInfant, NewbornMalePalliative CareRetrospective StudiescaregiverCHDdysphagiafeeding difficultiesinterstageoral feeding

Identifiers

PMID39988353
PMCPMC12148016

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.