Evidence map›Paper›PMID 39980903›Full record

ArticleFrontiers in global women's health2024

A holistic approach is needed for women with an inflammatory arthritis in the different phases around pregnancy; the results of the CAPRI study.

A J van Steensel-Boon, H M Wintjes, E Röder, H T W Smeele, L J C Kranenburg-van Koppen, R J E M Dolhain, L F Perez-Garcia

Abstract read
In one paragraph

Article in Frontiers in global women's health, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

A J van Steensel-Boon *Department of Rheumatology, Erasmus University Medical Center, Rotterdam, Netherlands.
H M Wintjes *Department of Rheumatology, Erasmus University Medical Center, Rotterdam, Netherlands.
E RöderDepartment of Rheumatology, Erasmus University Medical Center, Rotterdam, Netherlands.
H T W SmeeleDepartment of Rheumatology, Erasmus University Medical Center, Rotterdam, Netherlands.
L J C Kranenburg-van KoppenDepartment of Rheumatology, Erasmus University Medical Center, Rotterdam, Netherlands.
R J E M DolhainDepartment of Rheumatology, Erasmus University Medical Center, Rotterdam, Netherlands.
L F Perez-GarciaDepartment of Rheumatology, Erasmus University Medical Center, Rotterdam, Netherlands.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Introduction: Women with inflammatory arthritis (IA) face significant challenges throughout preconception, pregnancy, and postpartum phases, including concerns about disease management and medication safety. The Reproductive Rheumatology care pathway at Erasmus University Medical Center integrates specialized care from rheumatologists and specialized nurses to address both medical, nursing, practical and emotional needs during these phases. This study evaluates patient satisfaction, identifies unmet needs, and explores opportunities for enhancing support within this integrated care model. Methods: This was a cross-sectional study. We designed a customized questionnaire for women 18 years and older who were treated following the Reproductive Rheumatology care pathway and had given birth between 2019 and 2021. These women were invited to fill in the questionnaire. The survey assessed satisfaction with care, challenges experienced, and information needs across preconception, pregnancy, and postpartum phases. Descriptive statistics and paired Results: Participants reported high satisfaction with care, rating rheumatologists an average of 8.8/10 and specialized nurses 9.2/10. While 78.9% experienced no major issues, some faced problems such as managing disease flares and difficulties around conception. Information needs varied by phase: preconception needs focused on medication safety and fertility, while pregnancy and postpartum concerns included disease management and emotional support. Specialized nurses were pivotal in offering personalized care and practical advice. Conclusion: The integrated Reproductive Rheumatology care pathway effectively supports women with IA through their reproductive journey. Despite high satisfaction, improvements could be made in personalized care and addressing challenges related to confidence and help acceptance. Future research should investigate the long-term impact of such care pathways on reproductive outcomes and patient well-being.

Indexed as

inflammatory arthritisintegrated care pathwaypatient satisfactionpregnancyreproductive rheumatologyspecialized nurse

Identifiers

PMID39980903
PMCPMC11841435

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.