ArticleBritish journal of health psychology2025
"We are here too": Experiences and perceived support needs of adolescent siblings of Paediatric oncology inpatients.
Article in British journal of health psychology, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.
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Who cites it
3 citing papers in PubMed.
- Well-being and perceived social support in individuals with a sibling with psychiatric disorders: a comparative study.Social psychiatry and psychiatric epidemiology · 2026Article
- Health practitioners' perceptions of psychosocial support for siblings of children with poor prognosis cancers: a qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- "We are here too": Experiences and perceived support needs of adolescent siblings of Paediatric oncology inpatients.British journal of health psychology · 2025Article
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundAdolescent siblings of children and young people (CYP) with cancer are at increased risk of psychosocial difficulties, yet many remain overlooked and unsupported. This project aimed to explore the experiences and perceived needs of adolescent siblings of paediatric oncology inpatients to inform service improvement recommendations for sibling support.
methodsSemi-structured interviews were conducted with 10 siblings of CYP previously admitted to a paediatric oncology ward. Interviews were transcribed verbatim and analysed using reflexive thematic analysis. The findings were reviewed in consultation with staff and used to identify pragmatic/feasible recommendations for improving sibling support, organized using the three-tier 'Pediatric Psychosocial Preventative Health Model' (PPPHM; Families, Systems & Health, 2006, 24, 381).
resultsAn overarching narrative of siblings wanting to feel part of the cancer journey was found, including their family's experience on the ward, with three key themes: (i) "what about me?": overlooked and unseen, (ii) "always changing, never knowing": the challenge of uncertainty and (iii) "let me be part of it all": togetherness, communication and connection. These findings informed sibling support recommendations. Such recommendations included providing psychosocial screening, resources and opportunities for family time/communication and developmentally appropriate information to all siblings (universal support), monitoring psychosocial difficulties, siblings having someone to talk to and fostering family and peer connection for siblings requiring additional support (targeted support) and offering one-to-one psychological support and family therapy for persistent and/or escalating distress (clinical/treatment support).
conclusionsBased on the experiences of siblings, a range of sibling support recommendations have been identified. Implementation and evaluation of these recommendations are warranted.
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