Evidence map›Paper›PMID 39956590›Full record

ArticleBMJ open2025

Exploration of trust in participatory health research partnerships across two timepoints: a network approach.

Meghan Gilfoyle, Jon Salsberg, Anne Macfarlane, Miriam McCarthy, Padraig MacCarron

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Article in BMJ open, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

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2 · The registry

The trial behind it

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Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Meghan GilfoyleWomen's College Hospital, Toronto, Ontario, Canada.
Jon SalsbergSchool of Medicine, University of Limerick, Limerick, Ireland Jon.salsberg@ul.ie.ORCID http://orcid.org/0000-0003-2010-3691
Anne MacfarlaneSchool of Medicine, University of Limerick, Limerick, Ireland.ORCID http://orcid.org/0000-0002-9708-5025
Miriam McCarthyHealth Sciences Academy, University Hospital Limerick, Limerick, Ireland.
Padraig MacCarronMathematics Applications Consortium for Science and Industry (MACSI), Department of Mathematics and Statistics, University of Limerick, Limerick, Ireland.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThe value of a participatory approach to the generation of evidence for health and social services from a moral, methodological and policy level continues to gain recognition globally. Trust is a crucial mechanism in the participatory health research (PHR) process and is strongly influenced by context. However, gaps remain in conceptualising and operationalising trust over time in PHR partnerships.

objectiveThis case study seeks to address these gaps by exploring the evolution of trust multidimensionally across two timepoints. SETTING AND

participantsParticipants in a PHR project called the Public and Patient Involvement (PPI) Ignite Network in Ireland (n=57 (T1); n=56 (T2)) were invited to complete a network survey at two timepoints. The PPI Ignite Network had local and national partners. NETWORK MEASURES: Several core social network measures were calculated at both timepoints to characterise the differences between trust dimensions and between local and national partners.

resultsSubtle changes were observed across most network measures over the two timepoints. While there was a slight decrease in the number of connections for each trust dimension throughout the PPI Ignite Network, connections that were consistently nominated in both timepoints increased slightly. Some trust dimensions, such as vulnerability and integrity, were more similar, while others, like integrity and shared values, visions and goals, differed greatly, where national partners consistently received more incoming connections compared with local partners.

conclusionThese findings (1) provide empirical support for using social network analysis to operationalise trust comprehensively and multidimensionally over time in a participatory partnership, (2) offer nuanced insights into the trust development process within the PPI Ignite Network and (3) enhance our understanding of trust in the community-based participatory research model.

Indexed as

Community-Based Participatory ResearchPatient ParticipationSocial NetworkingTrustAdultFemaleHumansIrelandMaleSurveys and QuestionnairesCommunity-Based Participatory ResearchHealthSOCIAL MEDICINE

Identifiers

PMID39956590
PMCPMC11831290

What OpenQuestion holds

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LicenceCC BY-NC
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.