Evidence map›Paper›PMID 39940022›Full record

ArticleSociology of health & illness2025

Out of Sight, Out of Mind-Explaining and Challenging the Re-Institutionalisation of People With Learning Disabilities and/or Autistic People.

Jon Glasby, Justin Waring, Robin Miller, Anne-Marie Glasby, Rebecca Ince

Abstract read
In one paragraph

Article in Sociology of health & illness, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Jon GlasbyDepartment of Social Work and Social Care, University of Birmingham, Birmingham, UK.ORCID 0000-0003-3960-7988
Justin WaringSchool of Social Sciences and Humanities, Loughborough University, Loughborough, UK.ORCID 0000-0003-1459-5896
Robin MillerDepartment of Social Work and Social Care, University of Birmingham, Birmingham, UK.ORCID 0000-0003-2646-5589
Anne-Marie GlasbyChanging Our Lives, UK.
Rebecca InceDepartment of Social Work and Social Care, University of Birmingham, Birmingham, UK.ORCID 0000-0002-0725-7912

Funding

NIHR NIHR130298
6 · The paper itself

Abstract

During the twentieth century, many countries underwent processes of 'de-institutionalisation'-closing 'asylums' for people with mental health problems, learning disabilities and dementia. Despite this, the UK has witnessed a subsequent process of 're-institutionalisation' with the creation of new public/private sector facilities providing 'secure' care to large numbers of people, who can be residents for many years with no sense of when they may leave. In 2023, 2035 people with learning disabilities and/or autistic people were receiving inpatient hospital care in England, with 54% in hospital for over two years. Drawing on the lived experience of people in hospital/families, and the practice knowledge of front-line staff, this paper critically analyses why this process of re-institutionalisation may be taking place. Our argument is that institutional forms of care have gradually been re-introduced-despite the influence of neoliberal health policies that have previously aimed at deinstitutionalisation and self-care-because some people are viewed as 'too difficult' to govern through the prevailing dispositive of self-care, and therefore become the subjects of more disciplinary forms of power. Once in hospital, the primary routes to 'escape' require performative acts of 'good conduct' that give confidence to professionals of a person's capacity for self-government.

Indexed as

Autistic DisorderDeinstitutionalizationInstitutionalizationLearning DisabilitiesEnglandHumansUnited Kingdom

Identifiers

PMID39940022
PMCPMC11822089

What OpenQuestion holds

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LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.