Evidence map›Paper›PMID 39939836›Full record

ArticleScandinavian journal of public health2026

Access to healthcare for people with intellectual disability: a scoping review.

Maryann Barrington, Karen R Fisher, Ben Harris-Roxas, Catherine Spooner, Julian N Trollor, Janelle Weise

Abstract readScoping Review
In one paragraph

Article in Scandinavian journal of public health, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.

0numbers the graph read from it
0cells of the map it votes in
13citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

13 citing papers in PubMed.

  1. Review
  2. Article
  3. Opportunity Is Knocking at Public Health's Door.American journal of public health · 2026
    Article
  4. Article
  5. Mortality in Autism: A Longitudinal Register-Based Study.Journal of autism and developmental disorders · 2026
    Article
  6. Distributed Health Literacy Among People With Intellectual Disability, Their Supporters and Healthcare Professionals: A Scoping Review.Health expectations : an international journal of public participation in health care and health policy · 2026
    Article
  7. Article
  8. Co-Producing a Patient Reported Experience Measure (PREM) With and for People With Intellectual Disability.Health expectations : an international journal of public participation in health care and health policy · 2026
    Article
  9. Article
  10. Article
  11. Article
  12. Health From the Perspective of Adolescents With Intellectual Disabilities-Report From Poland.Journal of applied research in intellectual disabilities : JARID · 2025
    Article
  13. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Maryann BarringtonNational Centre of Excellence in Intellectual Disability Health, UNSW Sydney, NSW, Australia.ORCID 0000-0002-5666-0716
Karen R FisherSocial Policy Research Centre, UNSW Sydney, NSW, Australia.
Ben Harris-RoxasSchool of Population Health, UNSW Sydney, Australia.
Catherine SpoonerCentre for Primary Health Care & Equity, UNSW Sydney, NSW, Australia.
Julian N TrollorNational Centre of Excellence in Intellectual Disability Health, UNSW Sydney, NSW, Australia.
Janelle WeiseNational Centre of Excellence in Intellectual Disability Health, UNSW Sydney, NSW, Australia.ORCID 0000-0003-0783-5898

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

aimsPeople with intellectual disability experience stark health inequalities, often because of poor access to mainstream healthcare. This scoping review aimed to identify factors that influence access to healthcare for people with intellectual disability using Levesque and colleagues' comprehensive framework of healthcare access.

methodThis review followed Joanna Briggs Institute guidelines. Articles were identified and retrieved from CINAHL, PsycINFO, PubMed and EMBASE. Two reviewers completed abstract and full-text screening, addressing any conflicts at each stage. Data was extracted and coded deductively, according to the supply (healthcare provider) and demand (healthcare seeker) dimensions of Levesque and colleagues' framework.

resultsFollowing search and screening, 66 references were included for review. Barriers to healthcare were more frequently identified in the literature compared to facilitators, with most information relating to supply-side dimensions. Barriers were related to inaccessible health information, low health literacy, stigma and discrimination by healthcare providers, and lack of organisational support, training and resourcing in both healthcare and support sectors. Facilitators often involved specialist workforces, strong interpersonal skills among healthcare providers, and advocacy from supporters. Importantly, findings indicated that both sociohistorical processes and support networks are necessary to understanding access experiences for people with intellectual disability.

conclusions

Indexed as

Health Services AccessibilityIntellectual DisabilityHumanshealthcare disparitieshealth services accessibilityhealth services for persons with disabilitiesIntellectual disability

Identifiers

PMID39939836
PMCPMC12936145

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.