Evidence map›Paper›PMID 39939361›Full record

ArticleScientific data2025

Empowering open data sharing for social good: a privacy-aware approach.

Tânia Carvalho, Luís Antunes, Cristina Costa Santos, Nuno Moniz

Abstract readDataset
In one paragraph

Article in Scientific data, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Advancing global dementia research through equity and inclusion.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2026
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Tânia CarvalhoDepartamento de Ciência de Computadores, Faculdade de Ciências, Universidade do Porto, Rua do Campo Alegre, s/n, 4169-007, Porto, Portugal. tania.carvalho@fc.up.pt.ORCID http://orcid.org/0000-0002-7700-1955
Luís AntunesDepartamento de Ciência de Computadores, Faculdade de Ciências, Universidade do Porto, Rua do Campo Alegre, s/n, 4169-007, Porto, Portugal.
Cristina Costa SantosMEDCIDS - Department of Community Medicine, Information and Health Decision Sciences, Faculty of Medicine, University of Porto, Porto, Portugal.
Nuno MonizLucy Family Institute for Data and Society, University of Notre Dame, Indiana, USA.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

The Covid-19 pandemic has affected the world at multiple levels. Data sharing was pivotal for advancing research to understand the underlying causes and implement effective containment strategies. In response, many countries have facilitated access to daily cases to support research initiatives, fostering collaboration between organisations and making such data available to the public through open data platforms. Despite the several advantages of data sharing, one of the major concerns before releasing health data is its impact on individuals' privacy. Such a sharing process should adhere to state-of-the-art methods in Data Protection by Design and by Default. In this paper, we use a Covid-19 data set from Portugal's second-largest hospital to show how it is feasible to ensure data privacy while improving the quality and maintaining the utility of the data. Our goal is to demonstrate how knowledge exchange in multidisciplinary teams of healthcare practitioners, data privacy, and data science experts is crucial to co-developing strategies that ensure high utility in de-identified data.

Indexed as

ConfidentialityCOVID-19Information DisseminationPrivacyHumansPandemicsPortugalSARS-CoV-2

Identifiers

PMID39939361
PMCPMC11821814

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.