Evidence map›Paper›PMID 39932438›Full record

ArticleThe Gerontologist2025

Family Structure and Unmet Care Needs Among Older Adults With and Without Dementia in the United States.

Sarah E Patterson, Vicki A Freedman

Erratum issuedAbstract read
In one paragraph

Article in The Gerontologist, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

2 authors.

Sarah E PattersonInstitute for Social Research, University of Michigan, Ann Arbor, Michigan, USA.ORCID 0000-0002-5040-7576
Vicki A FreedmanInstitute for Social Research, University of Michigan, Ann Arbor, Michigan, USA.ORCID 0000-0002-4604-4207

Funding

The National Health and Trends StudyU01AG032947 · NIA · JOHNS HOPKINS UNIVERSITY · PI VICKI A. FREEDMAN, JENNIFER ANN SCHRACK · 2008 to 2026
$169.4M
Health, Wealth, and Wellbeing over the Life Course and Across GenerationsR01AG040213 · NIA · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI FRIEDMAN, ESTHER M. · 2011 to 2025
$31.2M
TRAINING IN THE DEMOGRAPHY OF AGINGT32AG000221 · NIA · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI Sarah A. Burgard · 1992 to 2026
$15.3M
Family Dynamics, Fertility, and Investments in Children Across Generations - Administrative SupplementR01HD069609 · NICHD · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI Thomas Fraser Crossley · 2011 to 2026
$14.2M
Trends and Dynamics in Caregiving for Alzheimer’s Disease and Related Dementias: Extending the National Study of CaregivingR01AG062477 · NIA · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI FREEDMAN, VICKI A., WOLFF, JENNIFER L. · 2019 to 2023
$10.0M
Caregiving, Complex Family and Kinship Ties, and Alzheimer's Disease and Related Dementias (ADRD)R00AG073473 · NIA · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI Sarah Elizabeth Patterson · 2024 to 2026
$742k
Caregiving, Complex Family and Kinship Ties, and Alzheimer's Disease and Related Dementias (ADRD)K99AG073473 · NIA · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI PATTERSON, SARAH ELIZABETH · 2022 to 2023
$249k
Johns Hopkins Bloomberg School of Public HealthNational Health and Aging Trends StudyNational Science Foundation SES1157698NIA NIH HHS K99 AG073473NIA NIH HHS K99AG073473NIA NIH HHS R00 AG073473NIA NIH HHS R01 AG040213NIA NIH HHS R01 AG062477NIA NIH HHS T32 AG000221NIA NIH HHS U01 AG032947NIA NIH HHS U01AG032947NICHD NIH HHS R01 HD069609NIH HHS R01HD069609
6 · The paper itself

Abstract

BACKGROUND AND

objectivesFamily members provide the bulk of assistance to older adults with care needs, but implications of family structure for unmet care needs-and differences when dementia is present-are less clear. RESEARCH DESIGN AND

methodsWe use samples of older adults with care needs from the 2015 National Health and Aging Trends Study (NHATS) and the 2017 Panel Study of Income Dynamics (PSID). We examine 2 measures that indicate whether needs are being met for self-care and mobility activities: having unassisted difficulty with at least one activity (NHATS, PSID) and experiencing any adverse consequences related to a lack of help (NHATS). In NHATS we also combine these to identify individuals with met (no unassisted difficulty; no consequences), self-met (unassisted difficulty only), under-met (any consequence only), and unmet needs (unassisted difficulty, any consequence).

resultsAdverse consequences were reported more often among those with dementia (43%) relative to those without (24%); in contrast, unassisted difficulty was reported by fewer older adults with dementia (68%, 70%) than without dementia (85%, 87%). Having more family members was positively associated (OR = 1.039) and having a spouse or partner was inversely associated (OR = 0.700) with experiencing adverse consequences. Having stepchildren was associated with lower odds of having unassisted difficulty (OR = 0.228, 0.531), but greater odds of unmet (relative to met) needs (RRR = 1.610). Most family associations were not moderated by dementia. DISCUSSION AND IMPLICATIONS: Adverse consequences, unassisted difficulty, and unmet need are distinct concepts, and produce different estimates and distinctive relationships with dementia and family structure.

Indexed as

DementiaFamilyFamily CharacteristicsHealth Services Needs and DemandAgedAged, 80 and overCaregiversFamily StructureFemaleHumansMaleSelf CareUnited StatesAgingDementiaFamily structureUnmet care needs

Identifiers

PMID39932438
PMCPMC12048798

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.