Evidence map›Paper›PMID 39930281›Full record

Trial reportJournal of autism and developmental disorders2026

Caregiver Satisfaction with Anxiety Treatment for Autistic Youth: A Mixed Methods Examination.

Lesley A Norris, Jonathan C Rabner, Marika Marklin, Margaret E Crane, Kathrin Renschler, Emma Jenkins, Joshua Kemp, Eric A Storch, Jeffrey J Wood, Connor M Kerns and 3 more

Abstract readRandomized Controlled Trial
In one paragraph

Trial report in Journal of autism and developmental disorders, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Lesley A NorrisDepartment of Psychiatry and Human Behavior, Warren Alpert Medical School of Brown University, Providence, RI, USA. lesley_norris@brown.edu.ORCID http://orcid.org/0000-0003-2072-4308
Jonathan C RabnerKennedy Krieger Institute, Baltimore, MD, USA.
Marika MarklinDepartment of Psychiatry and Human Behavior, Warren Alpert Medical School of Brown University, Providence, RI, USA.
Margaret E CraneDepartment of Psychiatry and Human Behavior, Warren Alpert Medical School of Brown University, Providence, RI, USA.
Kathrin RenschlerDepartment of Psychiatry and Human Behavior, Warren Alpert Medical School of Brown University, Providence, RI, USA.
Emma JenkinsDepartment of Psychiatry and Human Behavior, Warren Alpert Medical School of Brown University, Providence, RI, USA.
Joshua KempDepartment of Psychiatry and Human Behavior, Warren Alpert Medical School of Brown University, Providence, RI, USA.
Eric A StorchCollege of Medicine, Baylor College of Medicine, Houston, TX, USA.
Jeffrey J WoodDepartments of Education and Psychiatry, University of California, Los Angeles, CA, USA.
Connor M KernsDepartment of Psychology, University of British Columbia, Vancouver, BC, Canada.
Adam B LewinDepartment Pediatrics, University of South Florida, Tampa, FL, USA.
Brent J SmallSchool of Nursing, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
Philip C KendallDepartment of Psychology, Temple University, Philadelphia, PA, USA.

Funding

Sleep and Circadian Dysfunction, Brain and Neurobehavioral Development in AutismP50HD103538 · NICHD · HUGO W. MOSER RES INST KENNEDY KRIEGER · PI S. Ali Fatemi, Bradley L Schlaggar · 2020 to 2026
$9.9M
Preclinical and Clincial OutcomesP50HD103555 · NICHD · BAYLOR COLLEGE OF MEDICINE · PI Sandesh Chakravarthy Sreenath Nagamani, David Loren Nelson · 2020 to 2026
$9.9M
RESEARCH TRAINING IN CHILD MENTAL HEALTHT32MH019927 · NIMH · RHODE ISLAND HOSPITAL (PROVIDENCE, RI) · PI Kristen G Benito, Anthony Spirito · 1994 to 2026
$7.8M
1/3 Treatment of Anxiety in Autism Spectrum DisorderR01HD080098 · NICHD · UNIVERSITY OF CALIFORNIA LOS ANGELES · PI WOOD, JEFFREY JAMES · 2014 to 2016
$663k
3/3 Treatment of anxiety in autism spectrum disorderR01HD080097 · NICHD · TEMPLE UNIV OF THE COMMONWEALTH · PI KENDALL, PHILIP C · 2014 to 2016
$563k
2/3 Treatment of Anxiety in Autism Spectrum DisorderR01HD080096 · NICHD · UNIVERSITY OF SOUTH FLORIDA · PI STORCH, ERIC A. · 2014 to 2016
$471k
Developing measures for community-based research on trauma and related conditions in ASDK23HD087472 · NICHD · DREXEL UNIVERSITY · PI KERNS, CONNOR M · 2016 to 2018
$400k
Eunice Kennedy Shriver National Institute of Child Health and Human Development 1R01HD080096NICHD NIH HHS K23 HD087472NICHD NIH HHS P50 HD103538NICHD NIH HHS P50 HD103555NICHD NIH HHS R01 HD080096NICHD NIH HHS R01 HD080097NICHD NIH HHS R01 HD080098NIMH NIH HHS T32 MH019927
6 · The paper itself

Abstract

For Cognitive Behavioral Therapy to best meet the specific needs of autistic youth with co-occurring anxiety and to continue to grow as a sustainable treatment option, it is important to incorporate caregiver perspectives and feedback. Data were drawn from a randomized controlled trial and included 148 caregivers of autistic youth (ages 7-13 years, M = 9.89, SD = 1.79; 23% female; 77.7% White) with co-occurring anxiety disorders randomized to one of two active treatment conditions (Coping Cat, n = 72, or Behavioral Interventions for Anxiety in Children with Autism [BIACA], n = 76). A systematic inductive thematic analysis was used to code open-ended parent responses on the Consumer Satisfaction Questionnaire to identify what caregivers of autistic children with co-occurring anxiety liked most and least about their child's treatment. Satisfaction with treatment was high (M = 64.98, SD = 5.48). Caregivers' most-liked treatment features across treatments included (a) tools and coping skills, (b) therapeutic alliance, (c) caregiver support and involvement, (d) personalized treatment, and (e) treatment efficacy. Least-liked features of treatment and family participation included (a) the commute to the clinic, (b) treatment length, (c) commitment required at home, (d) questionnaires, and (e) scheduling. Treatment responders endorsed therapeutic alliance more frequently. Caregivers in BIACA endorsed caregiver support and involvement at higher rates, in addition to commitment required at home. Caregiver responses indicated a preference for more sessions and highlighted the importance of balancing need for caregiver involvement in treatment while reducing caregiver burden.

Indexed as

Anxiety DisordersAutism Spectrum DisorderAutistic DisorderCaregiversCognitive Behavioral TherapyPersonal SatisfactionAdolescentChildCoping SkillsFemaleHumansMaleParentsSurveys and QuestionnairesCognitive behavioral therapyExposure therapyMixed methodsSystematic inductive thematic analysisTreatment satisfactionYouth anxiety

Identifiers

PMID39930281
PMCPMC12723387

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.