Evidence map›Paper›PMID 39921791›Full record

ArticleJournal of patient-reported outcomes2025

Instruments for assessing patient-reported experience measures among patients with diabetes mellitus: a scoping review.

Soe Sandi Tint, Myo Zin Oo, Nida Buawangpong, Wichuda Jiraporncharoen, Nutchar Wiwatkunupakarn, Kittipan Rerkasem, Kanokwan Kulprachakarn, Hataichanok Chuljerm, Timothy E O'Brien, Rohini Mathur and 1 more

Abstract readScoping Review
In one paragraph

Article in Journal of patient-reported outcomes, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Development and Validation of a Culturally Adapted Patient-Reported Experience Measure for Diabetes Care in Thailand: Mixed-Methods Study.Health expectations : an international journal of public participation in health care and health policy · 2026
    Article
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Soe Sandi TintGlobal Health and Chronic Conditions Research Center, Chiang Mai University, Chiang Mai, 50200, Thailand.
Myo Zin OoEnvironmental-Occupational Health Sciences and Non-Communicable Diseases Research Center, Research Institute for Health Sciences, Chiang Mai University, Chiang Mai, Thailand.
Nida BuawangpongGlobal Health and Chronic Conditions Research Center, Chiang Mai University, Chiang Mai, 50200, Thailand.
Wichuda JiraporncharoenGlobal Health and Chronic Conditions Research Center, Chiang Mai University, Chiang Mai, 50200, Thailand.
Nutchar WiwatkunupakarnGlobal Health and Chronic Conditions Research Center, Chiang Mai University, Chiang Mai, 50200, Thailand.
Kittipan RerkasemSchool of Health Sciences Research, Research Institute for Health Sciences, Chiang Mai University, Chiang Mai, Thailand.
Kanokwan KulprachakarnSchool of Health Sciences Research, Research Institute for Health Sciences, Chiang Mai University, Chiang Mai, Thailand.
Hataichanok ChuljermSchool of Health Sciences Research, Research Institute for Health Sciences, Chiang Mai University, Chiang Mai, Thailand.
Timothy E O'BrienDepartment of Mathematics and Statistics, Loyola University Chicago, Chicago, IL, 60660, USA.
Rohini MathurWolfson Institute for Population Health, Queen Mary University of London, London, E1 2AT, UK.
Chaisiri AngkurawaranonGlobal Health and Chronic Conditions Research Center, Chiang Mai University, Chiang Mai, 50200, Thailand. chaisiri.a@cmu.ac.th.ORCID http://orcid.org/0000-0003-4206-9164

Funding

Presidential Scholarship, Chiang Mai University 2566-094Research Institute for Health Sciences, Chiang Mai University 021/2567
6 · The paper itself

Abstract

purposeDiabetes Mellitus (DM) management is increasingly focusing on patient-centered care, making patient-reported experience measures (PREMs) critical for understanding the subjective aspects of diabetes treatment and self-management. These measures differ based on cultural contexts and individual perspectives, leading different countries to the development of country-specific tools to assess care quality from the patient's viewpoint. This review aimed to identify available instruments for assessing patient-reported experiences in individuals with diabetes and examine the different domains, items, and the validity and reliability of these instruments.

methodsFollowing PRISMA-ScR guidelines, databases including PubMed, Embase, CINAHL, Cochrane, and Scopus were searched for English-language articles without year limitations. This scoping review focused on PREMs that evaluate the quality of diabetes care among adolescent and adult patients with type 1 and type 2 DM. Studies that used patient expectation questionnaires, involved individuals not receiving care, or focused on patient-reported outcomes rather than experiences were excluded.

resultsEight articles from six countries representing different healthcare settings were included, mostly from developed countries. A variety of methodologies were used to develop these PREM instruments, with unique domains and items. Content analysis revealed five commonly measured domains: (1) care planning, (2) patient education, (3) professionalism, (4) quality of care, and (5) hospital care and transition, reflecting diverse patient experiences across healthcare services.

conclusionsThis scoping review identifies a limited number of tools for evaluating PREMs in diabetes care, highlighting variability in their development and domain coverage. Five core domains are proposed across different settings, with an emphasis on culturally adapted measures to enhance the accuracy of patient experience capture in diverse populations.

Indexed as

Diabetes MellitusDiabetes Mellitus, Type 2Patient Reported Outcome MeasuresHumansPatient-Centered CarePatient SatisfactionQuality of Health CareReproducibility of ResultsSurveys and QuestionnairesDiabetes mellitusPatient-centered carePatient outcome assessmentPatient-reported experience measures

Identifiers

PMID39921791
PMCPMC11807032

What OpenQuestion holds

Textmetadata
LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.