Evidence map›Paper›PMID 39921697›Full record

ArticleJournal of cancer survivorship : research and practice2026

A qualitative study on the psycho-oncological experiences of women navigating breast cancer diagnosis, treatment, and survivorship in Ethiopia.

Biniyam Tefera Deressa, Amanda Pierz, Hyowoun Jyung, Bonnibel Rosario, Nichole Andoh-B-Baidoo, Bruk Tibebu, Edom Seife, Etsegenet Bekele, Rahima Hussein, Teferi Gedif and 2 more

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Article in Journal of cancer survivorship : research and practice, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

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0cells of the map it votes in
2citing papers in PubMed
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1 · What the graph read from it

What it found

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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

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Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

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4 · The record

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5 · Who and what money

Authors and funding

12 authors.

Biniyam Tefera DeressaAdama Hospital Medical College, Adama, Ethiopia. biniyamtefera.md@gmail.com.
Amanda PierzCity University of New York Graduate School of Health and Health Policy, New York, NY, USA.
Hyowoun JyungCity University of New York Graduate School of Health and Health Policy, New York, NY, USA.
Bonnibel RosarioCity University of New York Graduate School of Health and Health Policy, New York, NY, USA.
Nichole Andoh-B-BaidooCity University of New York Graduate School of Health and Health Policy, New York, NY, USA.
Bruk TibebuAddis Ababa University, Addis Ababa, Ethiopia.
Edom SeifeAddis Ababa University, Addis Ababa, Ethiopia.
Etsegenet BekeleAddis Ababa University, Addis Ababa, Ethiopia.
Rahima HusseinAdama Hospital Medical College, Adama, Ethiopia.
Teferi GedifAddis Ababa University, Addis Ababa, Ethiopia.
Purnima MadhivananMel & Enid Zuckerman College of Public Health, University of Arizona, Tucson, AZ, USA.
Breanne LottAlbert Einstein College of Medicine, Bronx, NY, USA.

Funding

Research Mentoring and Building Capacity of underrepresented Minority Research Scientists in India.D43TW010540 · FIC · YALE UNIVERSITY · PI MICHELE BARRY, Eva Harris · 2017 to 2026
$15.5M
FIC NIH HHS D43 TW010540
6 · The paper itself

Abstract

purposeTo understand the lived experiences of Ethiopian women who self-identify as breast cancer survivors, particularly facilitators, and barriers to engaging with care in biomedical settings.

methodsBetween November 2022 and January 2023, six focus group discussions were conducted in Amharic with 44 breast cancer patients and survivors in Adama, Ethiopia, stratified based on HIV status and participation in available peer support groups at their treatment hospital. Thematic analysis was conducted, with methodology reported in accordance with the Consolidated Criteria for Reporting Qualitative research checklist.

resultsOur analysis identified four key areas along the continuum of care: (1) recognition of BC-related symptoms, (2) seeking clinical care for BC symptoms, (3) adherence to BC treatment plans, and (4) coping strategies during ongoing care. Known facilitators for engagement in BC care included health education programming as well as emotional and financial support from loved ones and fellow survivors. However, participants described several barriers to clinical care such as the perception that BC is a death sentence, conflict between spiritual/traditional and clinical approaches to care, and fragmentation of care across multiple health facilities and providers.

conclusionsBased on some of the identified barriers to care, future efforts to enhance cancer care in Ethiopian settings should consider national awareness campaigns for BC to dispel local myths and misconception about BC, formal partnerships between faith-based community leaders and health care providers, and the use of family- and community-centered models of cancer care in biomedical settings. IMPLICATIONS FOR CANCER SURVIVORS: Recognition of psycho-oncological challenges to accessing clinical care for BC and providing opportunities for peer support and positive spirituality to navigate these challenges may improve patients' experiences in the Ethiopian biomedical system and reduce the potential negative experiences of future patients.

Indexed as

Breast NeoplasmsCancer SurvivorsSurvivorshipAdaptation, PsychologicalAdultEthiopiaFemaleFocus GroupsHumansMiddle AgedPsycho-OncologyQualitative ResearchSocial SupportBreast cancerEthiopiaHealth-seeking behaviorsPeer support groupsPsycho-Oncological experiencePsychosocial support

Identifiers

PMID39921697

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.