Evidence map›Paper›PMID 39916411›Full record

ArticleJournal of family nursing2025

Using a Trauma-Informed Care Approach to Understand Family Caregivers' Experiences of Accessing Formal Supports in Dementia Care.

Christine Meng, Safira Lachapelle, Adebusola Adekoya, Lucy Kervin, Kishore Seetharaman, Koushambhi Basu Khan, Jennifer Baumbusch

Abstract read
In one paragraph

Article in Journal of family nursing, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Christine MengThe University of British Columbia, Vancouver, Canada.ORCID 0009-0000-6936-9138
Safira LachapelleUniversity of Alberta, Edmonton, Canada.
Adebusola AdekoyaUniversity of Waterloo, Ontario, Canada.
Lucy KervinSimon Fraser University, Vancouver, British Columbia, Canada.
Kishore SeetharamanSimon Fraser University, Vancouver, British Columbia, Canada.
Koushambhi Basu KhanThe University of British Columbia, Vancouver, Canada.
Jennifer BaumbuschThe University of British Columbia, Vancouver, Canada.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Family caregivers provide essential care and support for individuals living with dementia, yet their contributions and needs are often unrecognized within formal health care systems. Over time, this marginalization can contribute to long-term trauma. Guided by a trauma-informed care (TIC) framework, we explored the experiences of 15 family caregivers in a longitudinal, qualitative study. Set in British Columbia, Canada, data were collected through semi-structured interviews and reflective diaries. Data were analyzed using inductive-deductive thematic analysis. Deductive analyses demonstrated that participants' experiences aligned with existing TIC principles. Inductive analysis identified "Uncertainty" as a novel principle, reflecting the ongoing challenges caregivers face from diagnosis to the inadequacy of in-home supports. Our study highlights the importance of recognizing trauma induced by interactions with formal health care services and the value of using a TIC approach with family caregivers of people living with dementia.

Indexed as

CaregiversDementiaFamilySocial SupportAdultAgedAged, 80 and overBritish ColumbiaFemaleHumansInterviews as TopicLongitudinal StudiesMaleMiddle AgedQualitative Researchdementiafamily caregiversformal supportsqualitativetrauma-informed care

Identifiers

PMID39916411
PMCPMC11843802

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.