Evidence map›Paper›PMID 39916343›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2025

Co-Design of the Structured Personalised Assessment for Reviews After Cancer (SPARC) Intervention.

Rosalind Adam, Lisa Duncan, Sara MacLennan, Louise Locock, Anne E Kiltie, Leslie Samuel, Peter Murchie

Abstract read
In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Rosalind AdamAcademic Primary Care, Institute of Applied Health Sciences, University of Aberdeen, Aberdeen, UK.ORCID 0000-0003-3082-6578
Lisa DuncanAcademic Primary Care, Institute of Applied Health Sciences, University of Aberdeen, Aberdeen, UK.
Sara MacLennanAcademic Urology Unit, Institute of Applied Health Sciences, University of Aberdeen, Aberdeen, UK.
Louise LocockAberdeen Centre for Evaluation, Institute of Applied Health Sciences, University of Aberdeen, Aberdeen, UK.ORCID 0000-0002-8109-1930
Anne E KiltieAberdeen Cancer Centre, Rowett Institute, University of Aberdeen, Aberdeen, UK.
Leslie SamuelOncology Department, School of Medicine, Medical Sciences and Nutrition, Aberdeen Royal Infirmary, University of Aberdeen, Aberdeen, UK.
Peter MurchieAcademic Primary Care, Institute of Applied Health Sciences, University of Aberdeen, Aberdeen, UK.

Funding

This study was funded by a Senior Clinical Fellowship awarded to Dr Rosalind Adam by the Chief Scientist Office, Scottish Government Health and Social Care Directorate (SCAF/18/02).
6 · The paper itself

Abstract

introductionAn increasing number of people are living beyond cancer with unmet health needs. The aim of this study was to co-design a digital intervention to improve health outcomes for people who have completed potentially curative treatment for cancer.

methodsTwo co-design workshops were held with patients, clinicians (including oncologists, general practitioners and nurses), digital/computing science experts and third-sector representatives. At workshop one, problems and gaps in care were identified and intervention ideas were generated. At workshop two, a prototype intervention was discussed and refined.

resultsThe workshops were attended by 43 people in total: 26 at event one and 23 at event two (six attended both events). Patients valued relationship-based care and felt supported during hospital treatment. Patients 'fell off a cliff' after discharge, and there was consensus that more could be done in primary care to support those living beyond cancer. It was proposed that cancer reviews could be integrated into UK primary care chronic disease management activities. A digital form, the 'Structured Personalised Assessment for Reviews after Cancer' (SPARC) tool, was developed to support asynchronous consultations that would cover the breadth of problems and health promotion activities required for high-quality primary care for cancer. SPARC could also identify those without problems who do not require review.

conclusionSPARC has been co-designed to support brief but comprehensive cancer review consultations between primary care clinicians and their patients. SPARC aligns with best practice guidelines. The next step is to evaluate SPARC with patients and in general practices. PATIENT AND PUBLIC CONTRIBUTION: Patient and stakeholder engagement was at the centre of this research study. Cancer organisations such as 'CLAN' cancer support, Prostate Cancer Scotland and Cancer Research UK helped us to engage with patients. The Aberdeen University Institute of Applied Health Science Patient Public Involvement group were also instrumental in sense-checking and improving the materials for the second workshop. We plan to involve our patient and carer partners in designing the next stages of our research (including study materials, processes and methods) so that they will be at the centre of evaluating the intervention that they have been instrumental in designing.

Indexed as

NeoplasmsHumansMalePrimary Health CareUnited Kingdomcancerchronic disease managementco‐designmultimorbidityprimary care

Identifiers

PMID39916343
PMCPMC11802641

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.