Evidence map›Paper›PMID 39916311›Full record

ArticleCancer2025

Community-engaged adaptation of ACCESS: A navigator-led early palliative care intervention for Black and Latina women with advanced breast cancer.

Melissa Mazor, Jenny J Lin, Cardinale Smith, William E Rosa, Dolores Moorehead, Rebecca M Boorstin, Jordan Karpin, Alex Nelson, Marie A Bakitas, Sarah Miller and 1 more

Abstract read
In one paragraph

Article in Cancer, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Melissa MazorIcahn School of Medicine at Mount Sinai, New York, New York, USA.ORCID https://orcid.org/0000-0003-0966-4578
Jenny J LinIcahn School of Medicine at Mount Sinai, New York, New York, USA.
Cardinale SmithIcahn School of Medicine at Mount Sinai, New York, New York, USA.
William E RosaDepartment of Psychiatry and Behavioral Sciences, Memorial Sloan Kettering Cancer Center, New York, New York, USA.ORCID https://orcid.org/0000-0002-0680-8911
Dolores MooreheadWomen's Cancer Resource Center, Berkeley, California, USA.
Rebecca M BoorstinIcahn School of Medicine at Mount Sinai, New York, New York, USA.
Jordan KarpinIcahn School of Medicine at Mount Sinai, New York, New York, USA.ORCID https://orcid.org/0000-0001-8664-1623
Alex NelsonIcahn School of Medicine at Mount Sinai, New York, New York, USA.
Marie A BakitasSchool of Nursing, University of Alabama at Birmingham, Birmingham, Alabama, USA.
Sarah MillerIcahn School of Medicine at Mount Sinai, New York, New York, USA.ORCID https://orcid.org/0000-0002-6805-2216
J Nicholas OdomSchool of Nursing, University of Alabama at Birmingham, Birmingham, Alabama, USA.

Funding

The Development and Evaluation of a Community-Based, Early Palliative Care Intervention for Black Women with Metastatic Breast CancerK08CA267309 · NCI · ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI · PI Melissa Mazor · 2022 to 2026
$958k
NCI NIH HHS K08 CA267309NCI NIH HHS NCI K08CA267309Rita and Alex Hillman Foundation
6 · The paper itself

Abstract

introductionDisparities in early palliative care (PC) access for Black and Latina women with advanced breast cancer (ABC) persist. This study elicited qualitative feedback from patients with ABC and health professionals to adapt a community navigator-led early PC program called ACCESS to improve PC access and supportive care outcomes for Black and Latina women with ABC.

methodsThis was a formative evaluation study using a community-engaged approach. Guided by a community advisory board, qualitative interviews were conducted with Black and Latina women with ABC (N = 20) and interdisciplinary health professionals and patient navigators (N = 20) to elicit feedback on the content, delivery, and format of ACCESS, a navigator-delivered early PC intervention to improve PC access and outcomes. Thematic analysis was conducted using inductive coding followed by deductive analysis using the Consolidated Framework for Implementation Research framework to guide intervention adaptation.

resultsFindings indicate that ACCESS addresses the early PC needs of Black and Latina women with ABC, yet needs to embed flexibility per patient preferences. Additionally, PC should be introduced as supportive care to enhance acceptability. Navigators emphasized fostering awareness and access to resources, which are crucial for patients' well-being. Strong interdisciplinary relationships and care coordination are essential for embedding ACCESS. Recognizing patient individuality, addressing historical and cultural factors, and ensuring navigators are empathetic, well-trained, and culturally aligned with patients were highlighted as pivotal for the intervention's success.

conclusionsThese findings will inform the adaptation of ACCESS for feasibility and preliminary efficacy testing.

Indexed as

Black or African AmericanBreast NeoplasmsHealth Services AccessibilityHispanic or LatinoPalliative CarePatient NavigationAdultAgedFemaleHealthcare DisparitiesHumansMiddle AgedQualitative Researchcommunity engaged intervention developmentcommunity navigationearly palliative carehealth equitysupportive care

Identifiers

PMID39916311
PMCPMC12482979

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.