Evidence map›Paper›PMID 39913606›Full record

ArticlePloS one2025

"They gave us the right to choose." A qualitative study of preferences for differentiated service delivery location among recipients of antiretroviral therapy at Lighthouse Trust in Lilongwe Malawi.

Lisa Orii, Kate S Wilson, Jacqueline Huwa, Christine Kiruthu-Kamamia, Odala Sande, Agness Thawani, Astrid Berner-Rodoreda, Evelyn Viola, Hannock Tweya, Petros Tembo and 3 more

Abstract read
In one paragraph

Article in PloS one, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Lisa OriiPaul G. Allen School of Computer Science & Engineering, University of Washington, Seattle, Washington, United States of America.ORCID 0000-0002-6490-4776
Kate S WilsonDepartment of Global Health, University of Washington, Seattle, Washington, United States of America.
Jacqueline HuwaLighthouse Trust, Lilongwe, Malawi.
Christine Kiruthu-KamamiaLighthouse Trust, Lilongwe, Malawi.
Odala SandeLighthouse Trust, Lilongwe, Malawi.
Agness ThawaniLighthouse Trust, Lilongwe, Malawi.
Astrid Berner-RodoredaFaculty of Medicine, Heidelberg Institute of Global Health, Heidelberg University, Heidelberg, Germany.ORCID 0000-0002-5484-890X
Evelyn ViolaLighthouse Trust, Lilongwe, Malawi.
Hannock TweyaDepartment of Global Health, University of Washington, Seattle, Washington, United States of America.
Petros TemboLighthouse Trust, Lilongwe, Malawi.
Wapu MasambukaLighthouse Trust, Lilongwe, Malawi.
Richard AndersonPaul G. Allen School of Computer Science & Engineering, University of Washington, Seattle, Washington, United States of America.
Caryl FeldackerDepartment of Global Health, University of Washington, Seattle, Washington, United States of America.ORCID 0000-0002-8152-6754

Funding

Malawi HIV Implementation Research Scientist Training Program (MHIRST)D43TW010060 · FIC · UNIV OF NORTH CAROLINA CHAPEL HILL · PI MINA CHRISTINE HOSSEINIPOUR, Victor Mwapasa · 2015 to 2026
$3.8M
The Community-based ART REtention and Suppression (CARES) App: an innovation to improve patient monitoring and evaluation data in community-based antiretroviral therapy programs in Lilongwe, MalawiR21MH127992 · NIMH · UNIVERSITY OF WASHINGTON · PI FELDACKER, CARYL, TWEYA, HANNOCK MUKOMA · 2022 to 2023
$382k
FIC NIH HHS D43 TW010060NIMH NIH HHS R21 MH127992
6 · The paper itself

Abstract

Some differentiated service delivery (DSD) models for antiretroviral therapy (ART) allow stable recipients of care (RoC) to receive multi-month ART drug refills and complete rapid reviews in community sites. As DSD options expand across sub-Saharan Africa, RoC's preferences and perspectives on community-based DSD versus clinic-based care models warrants attention. Lighthouse Trust (LT) implements DSD services for the Ministry of Health in Lilongwe, Malawi, including a community-based ART service delivery model that complements it traditional, clinic-based care. In this qualitative study, we explore reasons why RoC enrolled in LT clinics and eligible for DSD chose clinic-based ART services or a Nurse-led Community-based ART Program (NCAP) that reaches clients in established community peer support groups. We conducted eight focus group discussions (FGDs) among LT RoC: four FGDs among NCAP groups and four clinic-based FGDs (2 per setting) to explore opinions, preferences, and perceptions about ART service delivery. FGDs were recorded in Chichewa, translated and transcribed into English for thematic analysis. Findings were discussed with LT and NCAP teams to ensure results resonated with their personal experiences. Sixty-three participants took part in FGDs. Many findings were similar across care model. Across both NCAP and clinic FGDs, RoC were pleased with the care quality and appreciated the convenience of integrating their appointment visits at their chosen care model into their daily lives. Across FGDs, RoC also appreciated the quality of care, the respectful provider-to-patient interactions, and the attention to privacy at community and clinic sites. RoC in both clinic and NCAP care models expressed satisfaction with their chosen care model and preferred that choice over alternative options and locations, some noting their willingness to travel far to access LT's high quality of clinic-based care. Privacy protection was an important consideration for choosing care models. At LT clinics, RoC highlighted the importance of physical separation between LT's HIV-specific service site and other care services. In NCAP, RoC expressed that their choice of care model was reinforced by the sense of mutual support they received through NCAP peer support. These findings suggest the importance of offering personal choice to RoC on care model and selection of DSD options to support their ongoing engagement in care.

Indexed as

Anti-HIV AgentsAnti-Retroviral AgentsDelivery of Health CareHIV InfectionsPatient PreferenceAdultFemaleFocus GroupsHumansMalawiMaleMiddle AgedQualitative ResearchYoung AdultAnti-HIV AgentsAnti-Retroviral Agents

Identifiers

PMID39913606
PMCPMC11801716

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.