Evidence map›Paper›PMID 39910982›Full record

ArticleChild: care, health and development2025

Exploring the Extent and Nature of Disordered Eating Among Canadian Adolescents and Young Adults With Spina Bifida and Hydrocephalus.

Revi Bonder, Shauna Beaudoin, Lorry Chen, Paige Church, Marie Hooper, Melissa Thorne, Alene Toulany, Amy C McPherson

Abstract read
In one paragraph

Article in Child: care, health and development, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Review
  2. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Revi BonderBloorview Research Institute, Holland Bloorview Kids Rehabilitation Hospital, Toronto, Ontario, Canada.ORCID https://orcid.org/0000-0002-9711-851X
Shauna BeaudoinPrograms & Information, Hydrocephalus Canada, Toronto, Ontario, Canada.
Lorry ChenChild Development Program, Holland Bloorview Kids Rehabilitation Hospital, Toronto, Ontario, Canada.
Paige ChurchDivison of Neontology, Sunnybrook Health Sciences Centre, Toronto, Ontario, Canada.ORCID https://orcid.org/0000-0001-5844-3953
Marie HooperFlourish Health Services, Toronto, Ontario, Canada.
Melissa ThorneSpina Bifida and Spinal Cord Injury Clinic, Holland Bloorview Kids Rehabilitation Hospital, Toronto, Ontario, Canada.
Alene ToulanyDivision of Adolescent Medicine, Hospital for Sick Children, Toronto, Ontario, Canada.
Amy C McPhersonBloorview Research Institute, Holland Bloorview Kids Rehabilitation Hospital, Toronto, Ontario, Canada.ORCID https://orcid.org/0000-0003-4186-3200

Funding

Spina Bifida and Hydrocephalus Association of Canada
6 · The paper itself

Abstract

backgroundAdolescents and young adults (AYA) with spina bifida and/or hydrocephalus (SBH) are at a higher risk for disordered eating, poor body image and body dissatisfaction. Regrettably, there is limited research on the eating patterns and behaviours of AYA with SBH, as well as their body image perceptions.

objectivesThe purpose of this study was to explore the nature of disordered eating behaviours among AYA with SBH and their perceptions surrounding their body image. This study represents the first investigation of its kind conducted within a Canadian population. It fills a literature gap regarding the understanding of disordered eating behaviours and body image perceptions among young individuals with SBH in Canada.

methodsThe study comprised a self-report, cross-sectional online survey of AYA with SBH across Canada. The survey comprised validated brief measures to evaluate eating behaviours, disordered eating and body esteem. AYA aged 12-26 years with any type of SBH were eligible to participate.

resultsTwenty-four participants were recruited. Results indicated that AYA with SBH may face an elevated risk for eating disorders/disordered eating compared to their typically developing peers, due to a myriad of reasons not typically experienced in the general population such as bowel and bladder management, mobility issues and eating aversions. Findings also indicated that some AYA with SBH may have poor body image and that it is possible that this is not discussed in SBH clinics.

conclusionOur work underscores the urgency for further research that focuses on assessing eating disorders/disordered eating behaviours in AYA with SBH.

Indexed as

Body ImageFeeding and Eating DisordersHydrocephalusSpinal DysraphismAdolescentAdultCanadaChildCross-Sectional StudiesFeeding BehaviorFemaleHumansMaleSelf ReportYoung Adultbody imagedisordered eatingeating disordersyouth with disabilities

Identifiers

PMID39910982
PMCPMC11799823

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LicenceCC BY-NC-ND
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.