Evidence map›Paper›PMID 39905981›Full record

ArticleHealth promotion journal of Australia : official journal of Australian Association of Health Promotion Professionals2025

The Role of Aboriginal Kidney Health Mentors in the Transplant Journey: A Qualitative Evaluation.

Sophie Pascoe, David Croker, Lachlan Ross, Peter Henwood, Neil Wilkshire, Cedrina Algy, Selina Bob, Heather Hall, Michelle Misener, Gillian Gorham

Abstract read
In one paragraph

Article in Health promotion journal of Australia : official journal of Australian Association of Health Promotion Professionals, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Sophie PascoeWellbeing and Preventable Chronic Disease Division, Menzies School of Health Research, Casuarina, Northern Territory, Australia.ORCID https://orcid.org/0000-0002-2647-8593
David CrokerPanuku, Western Desert Nganampa Walytja Palyantjaku Tjutaku Aboriginal Corporation (Purple House), Darwin, Northern Territory, Australia.
Lachlan RossPanuku, Western Desert Nganampa Walytja Palyantjaku Tjutaku Aboriginal Corporation (Purple House), Darwin, Northern Territory, Australia.
Peter HenwoodPanuku, Western Desert Nganampa Walytja Palyantjaku Tjutaku Aboriginal Corporation (Purple House), Darwin, Northern Territory, Australia.
Neil WilkshirePanuku, Western Desert Nganampa Walytja Palyantjaku Tjutaku Aboriginal Corporation (Purple House), Darwin, Northern Territory, Australia.
Cedrina AlgyPanuku, Western Desert Nganampa Walytja Palyantjaku Tjutaku Aboriginal Corporation (Purple House), Darwin, Northern Territory, Australia.
Selina BobPanuku, Western Desert Nganampa Walytja Palyantjaku Tjutaku Aboriginal Corporation (Purple House), Darwin, Northern Territory, Australia.
Heather HallPanuku, Western Desert Nganampa Walytja Palyantjaku Tjutaku Aboriginal Corporation (Purple House), Darwin, Northern Territory, Australia.
Michelle MisenerPanuku, Western Desert Nganampa Walytja Palyantjaku Tjutaku Aboriginal Corporation (Purple House), Darwin, Northern Territory, Australia.
Gillian GorhamWellbeing and Preventable Chronic Disease Division, Menzies School of Health Research, Casuarina, Northern Territory, Australia.

Funding

National Indigenous Kidney Transplant Taskforce
6 · The paper itself

Abstract

issue addressedWhilst Aboriginal and Torres Strait Islander people in Australia experience disproportionately high rates of chronic kidney disease, they have lower rates of kidney transplantation and face many barriers to accessing culturally safe health care. Aboriginal kidney health mentors with lived experience of transplantation have been proposed to improve the patient journey and increase health promotion, but there has been limited evaluation of the role of mentors.

methodsA qualitative evaluation of the 'Hunting Kidney Transplant' patient mentoring project implemented by Purple House in the Northern Territory involved in-depth interviews, focus groups and participant observation with Aboriginal kidney health mentors and renal staff. Data analysis methods included inductive thematic coding and collaborative synthesis of emerging themes with Aboriginal co-researchers.

resultsAboriginal kidney health mentors play a holistic and multi-directional role helping people to navigate the transplant process. The role of mentors encompasses both visible and invisible work and is centred on a 'Right Way Working' approach, including building trust, respect and taking time during the work-up period. Key enablers include kinship and community connections and ongoing support from Purple House. Key barriers include COVID-19 and institutional racism within the mainstream health service.

conclusionsAboriginal health mentors with lived experience of chronic conditions can play an important role in supporting people and promoting cultural safety in health services. SO WHAT?: Further support and funding are needed to develop, evaluate and embed the mentor role into policy and practice to improve patient journeys, health promotion, transplant rates and health outcomes.

Indexed as

Australian Aboriginal and Torres Strait Islander PeoplesHealth Services, IndigenousKidney TransplantationMentorsQualitative ResearchAustraliaCOVID-19FemaleFocus GroupsHumansInterviews as TopicMaleNorthern TerritoryAustralian Aboriginal and Torres Strait Islander peopleschronic kidney diseasehealth services researchkidney transplantationprogramme evaluation

Identifiers

PMID39905981
PMCPMC11795221

What OpenQuestion holds

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LicenceCC BY-NC-ND
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.