Evidence map›Paper›PMID 39903420›Full record

ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2025

Health-related quality of life in parents of long-term childhood cancer survivors: a report from the Swiss Childhood Cancer Survivor Study - Parents.

Sonja Kälin, Julia Baenziger, Luzius Mader, Erika Harju, Fabienne Gumy-Pause, Felix Niggli, Grit Sommer, Gisela Michel, Katharina Roser

Abstract read
In one paragraph

Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Impact of Pediatric Leukemia on Maternal Anxiety, Depression, Sleep Quality, and Physical Activity.Medical science monitor : international medical journal of experimental and clinical research · 2025
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Sonja KälinFaculty of Health Sciences and Medicine, University of Lucerne, Lucerne, Switzerland.ORCID http://orcid.org/0000-0002-2092-8338
Julia BaenzigerFaculty of Health Sciences and Medicine, University of Lucerne, Lucerne, Switzerland.ORCID http://orcid.org/0000-0001-9121-4423
Luzius MaderFaculty of Health Sciences and Medicine, University of Lucerne, Lucerne, Switzerland.ORCID http://orcid.org/0000-0001-5613-4356
Erika HarjuFaculty of Health Sciences and Medicine, University of Lucerne, Lucerne, Switzerland.ORCID http://orcid.org/0000-0003-0791-6997
Fabienne Gumy-PauseDepartment of Women, Child and Adolescent, Onco-Hematology Unit, Geneva University Hospitals, Geneva, Switzerland.ORCID http://orcid.org/0000-0002-2835-4367
Felix NiggliUniversity Children's Hospital, University of Zurich, Zurich, Switzerland.ORCID http://orcid.org/0000-0002-7553-3712
Grit SommerInstitute of Social and Preventive Medicine, University of Bern, Bern, Switzerland.ORCID http://orcid.org/0000-0002-4205-7932
Gisela Michel *Faculty of Health Sciences and Medicine, University of Lucerne, Lucerne, Switzerland.ORCID http://orcid.org/0000-0002-9589-0928
Katharina Roser *Faculty of Health Sciences and Medicine, University of Lucerne, Lucerne, Switzerland. katharina.roser@unilu.ch.ORCID http://orcid.org/0000-0001-5253-3333

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeHaving a child with cancer can profoundly impact parents' health-related quality of life (HRQOL). However, there is a lack of knowledge about the long-term effects of childhood cancer on parents' well-being. The current study aimed to (1) describe the HRQOL of parents of long-term childhood cancer survivors (CCS) and compare it with that of parents from the general population in Switzerland, and (2) investigate sociodemographic and cancer-related determinants of lower HRQOL in parents of CCS.

methodsIn this cross-sectional study, a total of 751 parents of CCS (mean time since diagnosis = 23.7 years, SD = 6.7 years) and 454 parents from the general population reported their HRQOL by completing the Short Form-36 (SF-36v2). Sociodemographic and cancer-related characteristics were also collected.

resultsMultilevel regression analyses showed that parents of CCS and parents from the general population had similar physical and mental HRQOL. When comparing mothers and fathers separately, there were no differences between the samples, except for higher HRQOL in the domain of physical functioning in mothers of CCS. Cancer-related characteristics were not associated with HRQOL in parents of CCS. Several sociodemographic characteristics such as being female, being from the French or Italian-speaking part of Switzerland, having a lower education, having a chronic condition, and having a migration background were associated with lower HRQOL.

conclusionParents of CCS are doing well a long time after their child's cancer diagnosis. Nevertheless, tailored support should be provided for at-risk demographic groups.

Indexed as

Cancer SurvivorsNeoplasmsParentsQuality of LifeSurvivorsAdolescentAdultChildCross-Sectional StudiesFemaleHealth StatusHumansMaleMiddle AgedSocioeconomic FactorsSurveys and QuestionnairesChildhood cancer survivorsHealth-related quality of lifeLong-termParents

Identifiers

PMID39903420
PMCPMC11982166

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.