Evidence map›Paper›PMID 39885995›Full record

ArticleGates open research2024

"Life mapping" exploring the lived experience of COVID-19 on access to HIV treatment and care in Malawi.

Jane Harries, Ruby T Zolowere, Khokhelwa Zokwana, Krista Lauer, Jelena Bozinovski, Solange L Baptiste

Abstract read
In one paragraph

Article in Gates open research, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Jane HarriesUniversity of Cape Town, Rondebosch, Western Cape, 7700, South Africa.ORCID https://orcid.org/0000-0001-7359-8419
Ruby T ZolowereInternational Treatment Preparedness Coalition, Johannesburg, 2196, South Africa.
Khokhelwa ZokwanaInternational Treatment Preparedness Coalition, Johannesburg, 2196, South Africa.
Krista LauerInternational Treatment Preparedness Coalition, Johannesburg, 2196, South Africa.
Jelena BozinovskiInternational Treatment Preparedness Coalition, Johannesburg, 2196, South Africa.
Solange L BaptisteInternational Treatment Preparedness Coalition, Johannesburg, 2196, South Africa.

Funding

Gates Foundation INV-033421
6 · The paper itself

Abstract

Background: The COVID-19 pandemic in Malawi exacerbated, existing public health challenges including access to HIV treatment and care services. "Life Mapping," a component of the Citizen Science community-led project in Malawi, documented the lived experiences and perspectives of people living with HIV in the context of COVID-19. Methods: Citizen Science Life Maps is a three-year qualitative, longitudinal project utilizing collaborative and participatory research methods through digital storytelling to document peoples' daily lives. Twenty participants living with HIV were recruited between 2022 and 2023 in two central regional districts of Malawi and two urban areas. The participants were given mobile smart phones to document the impact of COVID-19 on HIV prevention and treatment services, HIV treatment literacy, mental health and the COVID -19 vaccine. Data was analyzed using a thematic analysis approach. Results: Access to HIV prevention and treatment slowly recovered yet introducing multi-month anti- retroviral dispensing raised concerns. In the absence of mental health care services, participants were resourceful in seeking alternative ways to deal with mental health. However, state sponsored violence in relation to COVID-19 public health measures impacted negatively not only on mental well-being but also on HIV treatment adherence. Whilst most recognized the importance of the COVID-19 vaccine, especially for people living with HIV, myths, misinformation, and conspiracy theories around the vaccine persisted especially religious themed misinformation. Conclusions: The relationship between misinformation and COVID-19 vaccine hesitancy is complex and medical and scientific approaches may not be sufficient to prevent misinformation. Fear and misinformation are likely attributed to global uncertainty during the pandemic and the speed at which vaccines were developed with minimal opportunity to prepare global communities.

Indexed as

COVID-19Health Services AccessibilityHIV InfectionsAdultCOVID-19 VaccinesFemaleHealth LiteracyHumansLongitudinal StudiesMalawiMaleMental HealthMiddle AgedPandemicsQualitative ResearchSARS-CoV-2COVID-19 VaccinesCOVID-19HIV treatmentMalawiParticipatory ResearchQualitative Research

Identifiers

PMID39885995
PMCPMC11781794

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.