Evidence map›Paper›PMID 39880439›Full record

ArticleBMJ open2025

Assessing the feasibility of measuring residents' quality of life in English care homes and the construct validity and internal consistency of measures completed by staff proxy: a cross-sectional study.

Ann-Marie Towers, Stacey Rand, Stephen Allan, Lucy Anne Webster, Sinead Palmer, Rachael Carroll, Adam L Gordon, Gizdem Akdur, Nick Smith, Jennifer Burton and 5 more

Abstract readValidation Study
In one paragraph

Article in BMJ open, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
14citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

14 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Trial
  3. Trial
  4. Article
  5. Norwegian translation and adaptation of the INT4 version of the Adult Social Care Outcomes Toolkit (ASCOT).Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026
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  7. Article
  8. Review
  9. Article
  10. Article
  11. Article
  12. Public Involvement to Enhance Care Home Research; Collaboration on a Minimum Data Set for Care Homes.Health expectations : an international journal of public participation in health care and health policy · 2025
    Article
  13. Article
  14. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

15 authors.

Ann-Marie TowersHealth and Social Care Workforce Research Unit, King's College London, London, UK c.goodman@herts.ac.uk Ann-Marie.Towers@kcl.ac.uk.ORCID http://orcid.org/0000-0003-3597-1061
Stacey RandPersonal Social Services Research Unit, University of Kent, Canterbury, UK.ORCID http://orcid.org/0000-0001-9071-2842
Stephen AllanPersonal Social Services Research Unit, University of Kent, Canterbury, UK.ORCID http://orcid.org/0000-0002-1208-9837
Lucy Anne WebsterCentre for Health Services Studies, University of Kent, Canterbury, UK.ORCID http://orcid.org/0000-0001-9152-4990
Sinead PalmerPersonal Social Services Research Unit, University of Kent, Canterbury, UK.
Rachael CarrollAcademic Unit of Injury, Recovery and Inflammation Sciences, University of Nottingham, Nottingham, UK.ORCID http://orcid.org/0009-0007-1838-1699
Adam L GordonAcademic Centre for Healthy Ageing (ACHA), Queen Mary University of London, London, UK.ORCID http://orcid.org/0000-0003-1676-9853
Gizdem AkdurCentre for Research in Public health and Community Care (CRIPACC), University of Hertfordshire, Hatfield, UK.ORCID http://orcid.org/0000-0001-7326-4750
Nick SmithCentre for Health Services Studies, University of Kent, Canterbury, UK.ORCID http://orcid.org/0000-0001-9793-6988
Jennifer BurtonSchool of Cardiovascular and Metabolic Health, University of Glasgow, Glasgow, UK.ORCID http://orcid.org/0000-0002-4752-6988
Anne KillettSchool of Health Sciences, University of East Anglia, Norwich, UK.ORCID http://orcid.org/0000-0003-4080-8365
Barbara HanrattyPopulation Health Sciences Institute, University of Newcastle upon Tyne, Newcastle upon Tyne, UK.ORCID http://orcid.org/0000-0002-3122-7190
Julienne MeyerCity University of London, London, UK.ORCID http://orcid.org/0000-0001-5378-2761
Karen SpilsburySchool of Healthcare, University of Leeds, Leeds, UK.ORCID http://orcid.org/0000-0002-6908-0032
Claire GoodmanCentre for Research in Public Health and Community Care, University of Hertfordshire, Hatfield, UK c.goodman@herts.ac.uk Ann-Marie.Towers@kcl.ac.uk.ORCID http://orcid.org/0000-0002-8938-4893

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectivesTo assess the feasibility of capturing older care home residents' quality of life (QoL) in digital social care records and the construct validity (hypothesis testing) and internal consistency (Cronbach's alpha) of four QoL measures.

designCross-sectional data collected in wave 1 of the DACHA (

settingCare homes (with or without nursing) registered to provide care for older adults (>65 years) and/or those living with dementia. All homes used a digital record system from one of two suppliers.

participantsData were extracted from 748 residents. All permanent residents, aged 65 years or older, were eligible to participate, including those lacking capacity to consent. Temporary residents and residents in their last weeks of life were excluded. OUTCOME MEASURES AND ANALYSIS: The English language versions of Adult Social Care Outcomes Toolkit (ASCOT)-Proxy-Resident, ICEpop CAPability measure for Older people (ICECAP-O), EQ-5D-5L proxy and the QUALIDEM were added to the digital record. As there have not been any previous studies of the structural validity of the English language version of the QUALIDEM, ordinal exploratory factor analysis (EFA) was applied for this measure only. Feasibility (% missing by software provider and measure), % floor/ceiling effects (>15% at lower/upper end of the scales), convergent or divergent construct validity (criterion of >75% of hypotheses accepted) and internal consistency (Cronbach's alpha ≥0.7) were assessed for all four measures.

resultsThe ordinal EFA of QUALIDEM did not replicate the findings of previous research. A six-factor (36 item) solution was proposed and used in all subsequent analyses. There were low rates of missing data (<5%) for all items, except ASCOT-Proxy-Resident Control (5.1%) and Dignity (6.2%) and QUALIDEM item 35 (5.1%). Ceiling effects were observed for the ASCOT-Proxy-Resident and two of the QUALIDEM subscales. None of the scales had floor effects. Cronbach's alpha indicated adequate internal consistency (α ≥0.70) for the ASCOT-Proxy-Resident, ICECAP-O and EQ-5D-5L proxy. There were issues with two QUALIDEM subscales. Construct validity for all measures was adequate.

conclusionsThe findings support the use of EQ-5D-5L, ASCOT-Proxy-Resident and the ICECAP-O in care homes for older people. The choice of measure will depend on the construct(s) of interest. More research is needed to establish the psychometric properties of the QUALIDEM in an English care home setting.

Indexed as

DementiaHomes for the AgedNursing HomesProxyQuality of LifeAgedAged, 80 and overCross-Sectional StudiesEnglandFeasibility StudiesFemaleHumansMaleReproducibility of ResultsSurveys and QuestionnairesDementiaNursing HomesPsychometricsQuality of Life

Identifiers

PMID39880439
PMCPMC11781126

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.