Evidence map›Paper›PMID 39880124›Full record

ArticleAmerican journal of transplantation : official journal of the American Society of Transplantation and the American Society of Transplant Surgeons2025

Transforming transplantation access: A federal directive for comprehensive pre-waitlisting data collection.

Rachel E Patzer, Jesse D Schold, Ryutaro Hirose, Jennifer A Cowger, Megan Urbanski, Marie Budev, Ashley Cardenas, Kate Giles, Adrian C Lawrence, Krista L Lentine and 4 more

Abstract read
In one paragraph

Article in American journal of transplantation : official journal of the American Society of Transplantation and the American Society of Transplant Surgeons, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Article
  4. Article
  5. Article
  6. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors.

Rachel E PatzerDepartment of Surgery, Indiana University School of Medicine, Indianapolis, Indiana, USA; Regenstrief Institute, Inc, Indianapolis, Indiana, USA. Electronic address: rapatzer@regenstrief.org.
Jesse D ScholdDepartment of Surgery, University of Colorado Health Anschutz Medical Campus, Aurora, Colorado, USA.
Ryutaro HiroseDivision of Transplant Surgery, Department of Surgery, University of Washington Medicine, Seattle, Washington, USA; Pediatric Transplant, Seattle Children's Hospital, Seattle, Washington, USA.
Jennifer A CowgerDivision of Cardiovascular Medicine, Section of Advanced Heart Failure and Transplant, Henry Ford Health, Detroit, Michigan, USA.
Megan UrbanskiDepartment of Surgery, Division of Transplantation, Emory University School of Medicine, Atlanta, Georgia, USA.
Marie BudevDepartment of Pulmonary Medicine, Cleveland Clinic, Cleveland, Ohio, USA.
Ashley CardenasCenter for Transplantation, Department of Surgery, University of California San Diego Health, San Diego, California, USA.
Kate GilesTransplant Center, Michigan Medicine, Ann Arbor, Michigan, USA.
Adrian C LawrenceDepartment of Internal Medicine, University of Texas Southwestern Medical Center, Dallas, Texas, USA.
Krista L LentineDivision of Nephrology, Department of Internal Medicine, Saint Louis University, St Louis, Missouri, USA; SSM Health Transplant Center, Saint Louis University Hospital, St Louis, Missouri, USA.
Christine MaxmeisterUniversity of Colorado Health Transplant Center, Aurora, Colorado, USA.
Hellen OduorMethodist Charlton Medical Center, Dallas, Texas, USA.
Sumit MohanDivision of Nephrology, Department of Medicine, Vagelos College of Physicians & Surgeons, Columbia University, New York, New York, USA; Department of Epidemiology, Mailman School of Public Health, Columbia University, New York, New York, USA.
Organ Procurement and Transplantation Network Data Advisory Committee Pre-Waitlisting Data Collection Workgroup

Funding

Implementing a Maternal health and PRegnancy Outcomes Vision for Everyone (IMPROVE)UL1TR002378 · NCATS · EMORY UNIVERSITY · PI Andres J Garcia, Elizabeth O. Ofili · 2017 to 2026
$92.1M
Institutional Career Development CoreKL2TR002381 · NCATS · EMORY UNIVERSITY · PI HENRY M BLUMBERG, Anandi Nayan Sheth · 2017 to 2026
$14.1M
Neuro HPA Project 1U54AG062334 · NIA · EMORY UNIVERSITY · PI Ighovwerha Ofotokun · 2018 to 2026
$12.2M
NCATS NIH HHS KL2 TR002381NCATS NIH HHS UL1 TR002378NIA NIH HHS U54 AG062334
6 · The paper itself

Abstract

There is substantial variation in access to transplantation across the United States that is not entirely explained by the availability of donor organs. Barriers to transplantation and variation in care among patients with end-stage organ disease exist prior to patients' placement on a transplant waiting list as well as following waitlist placement. However, there are currently no national data available to examine rates and variations in key care processes related to prelisting, including transplant referral, evaluation, or candidate selection. In February of 2024, the Health Resources and Services Administration released a directive and, in November 2024, released for public comment the proposed expansion of the Organ Procurement and Transplantation Network data collection to include pre-waitlist data for all solid organ transplant patients to promote transparency across the transplant continuum. Although data elements and details have not been finalized, the purpose of this article is to detail the rationale and anticipated details for pre-waitlisting data collection to inform the transplant community. These data aim to examine care processes and barriers to care for patients with end-stage organ disease in the United States.

Indexed as

Data CollectionHealth Services AccessibilityOrgan TransplantationTissue and Organ ProcurementTissue DonorsWaiting ListsHumansUnited Statesdata collectionorgan procurement and transplantation networkpre-waitlisting

Identifiers

PMID39880124
PMCPMC12043397

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.