Evidence map›Paper›PMID 39873723›Full record

Observational studyRheumatology (Oxford, England)2025

Barriers to and facilitators of sustaining a systemic lupus erythematosus (SLE) patient decision aid in regular rheumatology outpatient care in the USA.

Erin E Blanchard, Allyson G Hall, Ezra Gore, Parvaneh Yaghoubi Jami, Aizhan Karabukayeva, Larry R Hearld, Shelby Gontarz, Jasvinder A Singh

Registry-linked trialAbstract readObservational Study
PubMed Full text at PMC Publisher
In one paragraph

Observational study in Rheumatology (Oxford, England), 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03735238 (Implementing the Decision-Aid for Lupus), which is not on this map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT03735238 completednot on this map

Implementing the Decision-Aid for Lupus (IDEAL Strategy)

TypeobservationalSponsorUniversity of Alabama at BirminghamRan2018 to 2025Enrolled1,895ConditionsSystemic Lupus ErythematosusArmsSMILE Computerized Decision-Aid
3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Erin E BlanchardSchool of Health Professions, University of Alabama at Birmingham, Birmingham, AL, USA.
Allyson G HallSchool of Health Professions, University of Alabama at Birmingham, Birmingham, AL, USA.
Ezra GoreSchool of Health Professions, University of Alabama at Birmingham, Birmingham, AL, USA.
Parvaneh Yaghoubi JamiSchool of Health Professions, University of Alabama at Birmingham, Birmingham, AL, USA.
Aizhan KarabukayevaHudson College of Public Health, University of Oklahoma, Oklahoma City, OK, USA.
Larry R HearldSchool of Health Professions, University of Alabama at Birmingham, Birmingham, AL, USA.
Shelby GontarzImmunology/Rheumatology, University of Alabama at Birmingham, Birmingham, AL, USA.
Jasvinder A SinghImmunology/Rheumatology, University of Alabama at Birmingham, Birmingham, AL, USA.ORCID 0000-0003-3485-0006

Funding

The Effects of Urate Lowering Therapy on Inflammation, Endothelial function, andP50AR060772 · NIAMS · UNIVERSITY OF ALABAMA AT BIRMINGHAM · PI SAAG, KENNETH G · 2012 to 2021
$12.8M
NIAMS NIH HHS P50 AR060772Patient-Centered Outcomes Research Institute SDM-2017C2-8224PI CER-2020C1-19193VA Medical Center at Houston
6 · The paper itself

Abstract

objectiveThis study investigates the barriers to and facilitators of sustaining a decision aid (DA) tool for patients with SLE in routine rheumatology outpatient care across the USA. The DA was initially developed for assisting patients with SLE in making informed medication choices by providing personalized information on their treatment process.

methodsWe conducted semi-structured interviews with clinicians, administrators, and information technology (IT) professionals from 15 geographically diverse rheumatology clinics that participated in a large-scale DA implementation trial. Interviews were transcribed and analysed using NVivo, with thematic coding to identify key factors influencing DA sustainability.

resultsThe analysis identified several facilitators, including the DA's user-friendly design and its effectiveness in simplifying complex medical information, aiding informed decision-making for patients with SLE. Challenges affecting DA sustainability included inconsistent staff knowledge about the DA, difficulties integrating the DA into clinical workflows, a lack of executive and physician champions, and a lack of structured training and communication strategies. Additionally, concerns were raised about the availability of staff support and the technological capabilities required to maintain use of the DA.

conclusionTo sustain the DA in clinical practice, there is a need for enhanced training programs, better workflow integration, in-clinic physician champions, and effective use of electronic medical records for DA dissemination. Addressing these challenges would improve the impact of the DA on patient education and decision-making, ensuring its continued use in routine care.

trial registrationClinicalTrials.gov, NCT03735238.

Indexed as

Ambulatory CareDecision Support TechniquesLupus Erythematosus, SystemicPatient ParticipationRheumatologyFemaleHumansInterviews as TopicMaleUnited Statesdecision aidimplementationlupuspatient educationrheumatologysustainability

Identifiers

PMID39873723
PMCPMC13032127

What OpenQuestion holds

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.