Evidence map›Paper›PMID 39871775›Full record

ArticleChild: care, health and development2025

Improving Parent and Therapist Experiences of Codelivering Intensive Upper Limb Interventions for Children With Hemiplegia: A Qualitative Study Using the Theoretical Domains Framework.

Jill Massey, Vicki Tsianakas, Anne Gordon, Glenn Robert

Abstract read
In one paragraph

Article in Child: care, health and development, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

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0cells of the map it votes in
2citing papers in PubMed
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1 · What the graph read from it

What it found

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2 · The registry

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3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

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4 · The record

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PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Jill MasseyEvelina London Children's Hospital, Guy's and St Thomas' NHS Foundation Trust, London, UK.ORCID https://orcid.org/0000-0002-2570-2725
Vicki TsianakasFlorence Nightingale School of Nursing Midwifery and Palliative Care, London, UK.ORCID https://orcid.org/0000-0003-4177-6019
Anne GordonEvelina London Children's Hospital, Guy's and St Thomas' NHS Foundation Trust, London, UK.
Glenn RobertFlorence Nightingale School of Nursing Midwifery and Palliative Care, London, UK.ORCID https://orcid.org/0000-0001-8781-6675

Funding

National Institute for Health and Care Research, Integrated Clinical Academic Programme-Clinical Doctoral Research Fellowship NIHR300556
6 · The paper itself

Abstract

backgroundPartnership working between parents and therapists is a key component of family-centred care (FCC). Such partnerships in paediatric intervention delivery can help achieve required levels of dosage, intensity and embed interventions in the child's everyday activities. This study explores the experience and views of parents and therapists codelivering an intensive upper limb intervention programme for children with hemiplegia, to find ways to enhance successful partnership working.

methodsSemistructured interviews were conducted with 12 parents and 8 therapists (3 hospital-based and 5 community-based). To help make evidence-based recommendations, data were analysed using inductive reflexive analysis and mapped to the Theoretical Domains Framework (TDF) of constructs that are common determinants of clinical behaviours or practices.

resultsFive major themes were identified as follows: (1) realities of accessing intensive intervention, (2) key components of intervention delivery, (3) role of goal setting, (4) importance of partnership and (5) impact of intervention delivery on parents. Our findings showed that overall parents valued involvement in the programme, acknowledging benefits and challenges, as well as aspects in which they needed further support. Hospital therapists identified various education and training needs to improve their capabilities to coach parents and to collaboratively set meaningful goals. Community therapists valued the opportunity to develop their skills in intensive intervention and were keen to see evidence-based interventions offered in the community.

conclusionsIt is possible for parents, hospital therapists and community therapists to codeliver intensive upper limb intervention programmes to children with hemiplegia. However, it is important to create a flexible programme which clearly acknowledges the roles, skills and unique contributions of parents and therapists which is conducive to truly equal partnership working in appropriate settings.

Indexed as

HemiplegiaParentsPhysical TherapistsPhysical Therapy ModalitiesUpper ExtremityAdultAttitude of Health PersonnelCerebral PalsyChildChild, PreschoolFemaleHumansMaleProfessional-Family RelationsQualitative Researchcerebral palsyfamily‐centred servicepaediatricsparent participationqualitative research methodsrehabilitation

Identifiers

PMID39871775
PMCPMC11774132

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.