ArticleComputational and structural biotechnology journal2025
Self-sovereign management scheme of personal health record with personal data store and decentralized identifier.
Article in Computational and structural biotechnology journal, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
3 citing papers in PubMed.
- From Biomedical Datasets to Fairness-Aware Recommendations: An Integrated Data Orchestration Pipeline for Binary Clinical Predictions.Computational and structural biotechnology journal · 2026Article
- WiraChain: a blockchain and FHIR-based platform for improving clinical data interoperability in healthcare.Frontiers in public health · 2026Article
- The Self-Sovereign Patient as a Cornerstone of Healthcare 4.0.Blockchain in healthcare today · 2025Article
Corrections and comments
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Conventional personal health record (PHR) management systems are centralized, making them vulnerable to privacy breaches and single points of failure. Despite progress in standardizing healthcare data with the FHIR format, hospitals often lack efficient platforms for transferring PHRs, leading to redundant tests and delayed treatments. To address these challenges, we propose a decentralized PHR management system leveraging Personal Data Stores (PDS) and Decentralized Identifiers (DIDs) in line with the Web 3.0 model. Our system features secure interoperability and personal identification masking. Interoperability is achieved through DID digital certificates for verifying PDS addresses and a dynamic access key (AK) system to minimize credential exposure. Data de-identification, including anonymization and encryption, ensures privacy and prevents unauthorized access. We developed a prototype using the Solid open-source library and Hyperledger Aries protocol. Testing showed efficient performance, with DID validations and AK generation under one second, and data operations for 500 MB-sized PHRs completing in two seconds. De-identification processes were both effective and timely. The system demonstrated the ability to manage PHRs securely, empower users with control over their healthcare data, facilitate seamless and secure data transfer between patients and medical entities, and prevent exposure of sensitive information. This approach advances decentralized PHR management, supporting improved healthcare outcomes and patient experiences in the digital era.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.