Evidence map›Paper›PMID 39866742›Full record

ArticleProceedings of the ACM on human-computer interaction2024

Menopause Legacies: Designing to Record and Share Experiences of Menopause Across Generations.

Shaan Chopra, Lisa Orii, Katherine Juarez, Nussara Tieanklin, James Fogarty, Sean A Munson

Abstract read
In one paragraph

Article in Proceedings of the ACM on human-computer interaction, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Shaan ChopraUniversity of Washington, USA.
Lisa OriiUniversity of Washington, USA.
Katherine JuarezUniversity of Washington, USA.
Nussara TieanklinUniversity of Washington, USA.
James FogartyUniversity of Washington, USA.
Sean A MunsonUniversity of Washington, USA.

Funding

Transform Dissemination and Implementation Science in CTSA ProgramsUL1TR002319 · NCATS · UNIVERSITY OF WASHINGTON · PI John K. Amory · 2017 to 2026
$100.0M
Open Tools for Self-Tracking, Self Experimentation, and Patient-Provider Collaboration in Symptom Self-Management and Clinical CareR01LM012810 · NLM · UNIVERSITY OF WASHINGTON · PI FOGARTY, JAMES A · 2018 to 2021
$1.3M
NCATS NIH HHS UL1 TR002319NLM NIH HHS R01 LM012810
6 · The paper itself

Abstract

Menopause is often overlooked or medicalized, consequently devaluing individual experiences and failing to support individuals experiencing this life event. Family dynamics, death, and taboo further mean that individuals often miss out on information that could help them contextualize their experiences. We examine participant experiences with menopause and explore designs of digital and non-digital legacies for sharing menopause experiences across generations. We conducted semi-structured interviews and design sessions with 17 participants who experienced or are experiencing menopause. We report participant information needs and sense-making practices, including what personalized information participants wish to pass down and preferred formats for intergenerational sharing. Findings highlight the potential of using storytelling and life-logging to create "holistic" memories of the menopause journey, to support self-reflection, and for using legacies to initiate conversations about marginalized health experiences. We identify future design and research opportunities for the HCI and CSCW communities to support intergenerational sharing of non-medicalized and stigmatized health experiences.

Indexed as

design considerationsdigital legacyheirloominformation needslife-loggingmenopausenarrativenon-medicalized healthpersonal informaticssense-makingsupportwomen’s health

Identifiers

PMID39866742
PMCPMC11759488

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.