ArticleJournal of eating disorders2025
Improving eating disorder care for underserved groups: a lived experience and quality improvement perspective.
Article in Journal of eating disorders, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers.
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Who cites it
19 citing papers in PubMed.
- Reflections on the role of Peer Researchers in eating disorders: identifying challenges, best practices, and future directions.Journal of eating disorders · 2026Article
- Care approaches for people with longstanding eating disorders: a lived experience perspective on the need for recovery-fostering care.Journal of eating disorders · 2026Article
- Iatrogenic harm and premature treatment discontinuation in eating disorders: a lived experience response to Wade and Schmidt (2026).Journal of eating disorders · 2026Article
- Iatrogenic harm in eating disorder treatment: a lived experience-led call for epistemic justice and accountability.Journal of eating disorders · 2026Article
- Conceptualising trauma in eating disorders: a reflexive commentary on the role of neglect, iatrogenic harm, and epistemic injury.Journal of eating disorders · 2026Article
- Food Insecurity in Individuals with Eating Disorders: A UK-Wide Survey of Impact, Help-Seeking, and Suggestions for Guidance.Nutrients · 2026Article
- The importance of learning from people with lived experiences of eating disorders.Journal of eating disorders · 2026Article
- Understanding atypical eating behaviours in women with obsessive-compulsive disorder: A qualitative study.PloS one · 2026Article
- "I feel like there's going to have to be catastrophe before I am seen:..and that is going to be devastating": Visibility, recognition, and medical silencing in eating disorders and disordered eating.PLOS mental health · 2026Article
- Experiences of disordered eating and exercise behaviors of neurodivergent, gender diverse youth: A scoping review.International journal of transgender health · 2026Review
- Key features of illness and treatment experiences in longstanding anorexia nervosa: qualitative descriptive study.BJPsych open · 2025Article
- Seeing clearly: why gender and sexual diversity must remain in eating disorder science.Eating and weight disorders : EWD · 2025Review
- "In Their Own Words": A Qualitative Exploration of Lived Experience and Healthcare Professional Perspectives on Evaluating a Digital Intervention for Binge Eating.The International journal of eating disorders · 2025Article
- Broad considerations for improving eating disorder care: a lived experience and quality improvement perspective.Journal of eating disorders · 2025Article
- Assessing the Usability, Feasibility, and Engagement in IM FAB, a Functionality-Focused Micro-Intervention to Reduce Eating Disorder Risk.International journal of environmental research and public health · 2025Article
- Institutional Abuse, Neglect and Harm in UK Community Mental Health Services: A Scoping Review of the Peer-Reviewed Evidence.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- A shift or a substitution? On naming, exclusion, and co-production in longstanding eating disorders: matters arising from Lubieniecki et al. (2025).Journal of eating disorders · 2025Article
- A call for a trauma-informed approach during compulsory care for enduring anorexia nervosa with combined PTSD - an autoethnographic perspective.Journal of eating disorders · 2025Article
- Detecting and addressing eating disorders among individuals experiencing food insecurity: considerations for dietetic practice.Frontiers in nutrition · 2025Article
Corrections and comments
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Authors and funding
1 author.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Improvements to eating disorder (ED) care are urgently needed in the United Kingdom (UK) and around the world. Informed by my lived experiences, independent research, and involvement in the underappreciated field of quality improvement (QI), I have written this article to offer ideas on how to improve individuals' access to and experiences of ED care. As I live in the UK, my lived and QI experiences are of the UK's National Health Service (NHS). However, much of this article's content can be applied broadly to healthcare providers around the world, as similar ED care improvements are needed internationally. Furthermore, this commentary is informed by the latest international research.In this paper, I will identify and discuss 12 groups of individuals whom I believe are more likely to be underserved in ED care. The 12 'underserved groups' (USGs) are as follows: [USG. 1] People with longstanding EDs and/or older-age ED sufferers; [USG. 2] Younger children/preadolescents; [USG. 3] People with under-recognised/underappreciated EDs; [USG. 4] People with higher weights; [USG. 5] People with comorbidities; [USG. 6] People with neurodevelopmental conditions (neurodiverse people); [USG. 7] Digitally excluded people; [USG. 8] Socioeconomically and/or sociogeographically disadvantaged people; [USG. 9] Ethnic/racial minorities; [USG. 10] Sexual and gender-diverse people; [USG. 11] Males; [USG. 12] Caregivers/loved ones.ED sufferers/caregivers are also an underserved group as a whole in general mental health care, so broader considerations for improving ED care will be explored in a future publication; these include stigma, research biases, inadequate clinical monitoring and diagnosing, poor-quality treatments, disorganised service transitions, systemic problems/inefficiencies, and underfunding/under-resourcing. Specific recommendations for USGs 1-12 must be considered alongside these and other broader issues. Throughout both articles, I advocate a humanistic care model/approach based on the inexpensive principles of compassion, hope, empathy, appreciation (of identity), and patience ('CHEAP').
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