Evidence map›Paper›PMID 39842003›Full record

ArticleJMIR human factors2025

The Significance of a Cerebrovascular Accident Outcome Prediction Model for Patients, Family Members, and Health Care Professionals: Qualitative Evaluation Study.

Corinne G Allaart, Sanne van Houwelingen, Pieter He Hilkens, Aart van Halteren, Douwe H Biesma, Lea Dijksman, Paul B van der Nat

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Article in JMIR human factors, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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1 · What the graph read from it

What it found

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2 · The registry

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3 · Its place in the literature

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4 · The record

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5 · Who and what money

Authors and funding

7 authors.

Corinne G AllaartDepartment of Computer Science, Faculty of Science, Vrije Universiteit Amsterdam, Amsterdam, Netherlands.ORCID 0000-0002-5262-3723
Sanne van HouwelingenDepartment of Computer Science, Faculty of Science, Vrije Universiteit Amsterdam, Amsterdam, Netherlands.ORCID 0009-0004-4786-5498
Pieter He HilkensDepartment of Value Improvement, St. Antonius Hospital, Nieuwegein, Netherlands.ORCID 0009-0002-2344-9348
Aart van HalterenDepartment of Computer Science, Faculty of Science, Vrije Universiteit Amsterdam, Amsterdam, Netherlands.ORCID 0000-0002-9631-0657
Douwe H BiesmaLeiden Unversity Medical Center, Leiden, Netherlands.ORCID 0000-0001-8334-3057
Lea DijksmanDepartment of Value Improvement, St. Antonius Hospital, Nieuwegein, Netherlands.ORCID 0000-0001-9227-1390
Paul B van der NatDepartment of Value Improvement, St. Antonius Hospital, Nieuwegein, Netherlands.ORCID 0000-0002-0990-073X

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundPatients with cerebrovascular accident (CVA) should be involved in setting their rehabilitation goals. A personalized prediction of CVA outcomes would allow care professionals to better inform patients and informal caregivers. Several accurate prediction models have been created, but acceptance and proper implementation of the models are prerequisites for model adoption.

objectiveThis study aimed to assess the added value of a prediction model for long-term outcomes of rehabilitation after CVA and evaluate how it can best be displayed, implemented, and integrated into the care process.

methodsWe designed a mock-up version, including visualizations, based on our recently developed prediction model. We conducted focus groups with CVA patients and informal caregivers, and separate focus groups with health care professionals (HCPs). Their opinions on the current information management and the model were analyzed using a thematic analysis approach. Lastly, a Measurement Instrument for Determinants of Innovations (MIDI) questionnaire was used to collect insights into the prediction model and visualizations with HCPs.

resultsThe analysis of 6 focus groups, with 9 patients, 4 informal caregivers, and 8 HCPs, resulted in 10 themes in 3 categories: evaluation of the current care process (information absorption, expectations of rehabilitation, prediction of outcomes, and decision aid), content of the prediction model (reliability, relevance, and influence on the care process), and accessibility of the model (ease of understanding, model type preference, and moment of use). We extracted recommendations for the prediction model and visualizations. The results of the questionnaire survey (9 responses, 56% response rate) underscored the themes of the focus groups.

conclusionsThere is a need for the use of a prediction model to assess CVA outcomes, as indicated by the general approval of participants in both the focus groups and the questionnaire survey. We recommend that the prediction model be geared toward HCPs, as they can provide the context necessary for patients and informal caregivers. Good reliability and relevance of the prediction model will be essential for its wide adoption.

Indexed as

FamilyHealth PersonnelStrokeStroke RehabilitationAdultAgedCaregiversFemaleFocus GroupsHumansMaleMiddle AgedQualitative Researchartificial intelligencecerebrovascular accidentfocus groupshealth care professionalsinformal caregiversmachine learningquestionnairevisualization

Identifiers

PMID39842003
PMCPMC11799809

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.