Evidence map›Paper›PMID 39838501›Full record

SynthesisSystematic reviews2025

Measurement properties of the Traumatic Brain Injury Quality of Life (TBI-QoL) and Spinal Cord Injury Quality of Life (SCI-QoL) measurement systems: a systematic review.

Rebecca Ataman, Rehab Alhasani, Line Auneau-Enjalbert, Adria Quigley, Henry Ukachukwu Michael, Sara Ahmed

Abstract readSystematic Review
In one paragraph

Synthesis in Systematic reviews, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Rebecca AtamanSchool of Physical and Occupational Therapy, McGill University, Montréal, Québec, Canada.ORCID 0000-0001-5419-5817
Rehab AlhasaniDepartment of Rehabilitation, Princess Nora Bint Abdul Rahman University, Riyadh, Saudi Arabia.
Line Auneau-EnjalbertSchool of Physical and Occupational Therapy, McGill University, Montréal, Québec, Canada.
Adria QuigleySchool of Physiotherapy, Dalhousie University, Forrest Building, 5869 University Avenue, PO Box 15000, Halifax, NS, B3H 4R2, Canada.ORCID 0000-0003-2404-7949
Henry Ukachukwu MichaelDivision of Experimental Medicine, McGill University, Montreal, QC, Canada.ORCID 0000-0002-1944-0650
Sara AhmedSchool of Physical and Occupational Therapy, McGill University, Montréal, Québec, Canada. sara.ahmed@mcgill.ca.ORCID 0000-0001-5172-6790

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeTraumatic brain injury and spinal cord injury impact all areas of individuals' quality of life. A synthesis of available evidence for the Traumatic Brain Injury Quality of Life (TBI-QoL) and Spinal Cord Injury Quality of Life (SCI-QoL) measurement systems could inform evidence-based clinical practice and research. Thus, we aimed to systematically review the literature of existing evidence on the measurement properties of SCI-QoL and TBI-QoL among rehabilitation populations.

methodsWe used the COnsensus-based Standards for the selection of health Measurement Instruments (COSMIN) framework for evaluating measures to guide this systematic review. We searched nine electronic databases and registries, and hand-searched reference lists of included articles. Two independent reviewers screened selected articles and extracted the data. We used COSMIN's thresholds to synthesize measurement properties evidence (insufficient, sufficient), and the modified GRADE approach to synthesize evidence quality (very-low, low, moderate, high).

resultsWe included 16 studies for SCI-QoL and 14 studies for TBI-QoL. Both measurement systems have sufficient content validity, structural validity, internal consistency and construct validity across nearly all domains (GRADE: high). Most SCI-QoL domains and some TBI-QoL domains have sufficient evidence of cross-cultural validity and test-retest reliability (GRADE: moderate-high). Besides the cognition domains of TBI-QoL, which have indeterminate evidence for measurement error and sufficient evidence for responsiveness (GRADE: high), there is no additional evidence available for these measurement properties.

conclusionRehabilitation researchers and clinicians can use SCI-QoL and TBI-QoL to describe and evaluate patients. Further evidence of measurement error, responsiveness, and predictive validity would advance the use and interpretation of SCI-QoL and TBI-QoL in rehabilitation.

Indexed as

Brain Injuries, TraumaticQuality of LifeSpinal Cord InjuriesHumansPsychometricsReproducibility of ResultsCOnsensus-based Standards for the selection of health Measurement Instruments (COSMIN)Patient-reported outcome measuresPsychometricsSpinal cord injurySystematic reviewTraumatic brain injury

Identifiers

PMID39838501
PMCPMC11749626

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.