ArticleArchives of public health = Archives belges de sante publique2025
Cultural adaptation of ENABLE (Educate, Nurture, Advise, Before Life Ends) an early palliative care model for Iranian patients with heart failure and their caregivers: a qualitative study protocol.
Article in Archives of public health = Archives belges de sante publique, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
1 citing paper in PubMed.
- Cross-Cultural Adaptation and Psychometric Assessment of the Persian Version of the FACIT-Pal Quality of Life Instrument: A Study Protocol.Health science reports · 2026Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundENABLE (Educate, Nurture, Advise, Before Life Ends) is a model of nurse-led, early palliative care that was originally developed for U.S. patients with advanced cancer and their family caregivers and then adapted for patients with heart failure. ENABLE coaching topics include problem-solving, communication, advance care planning, symptom management, and self-care. The purpose of this paper is to detail a qualitative study protocol to assess the cultural acceptability of ENABLE among heart failure patients and their family caregivers in Iran.
methodsThis qualitative study employs reflexive thematic analysis (RTA) to guide the cultural adaptation of the ENABLE model. The study is conducted in two phases. In Phase 1, the ENABLE content will be translated and validated into Persian using a forward-backward translation process and expert panel review to ensure linguistic and cultural appropriateness. In Phase 2, semi-structured interviews will be conducted with individuals living with HF, their caregivers, and healthcare providers at Tehran University of Medical Sciences. The one-on-one semi-structured interviews will explore three main areas: (1) the primary needs and challenges faced by individuals with heart failure and their family caregivers, (2) the extent of patients' involvement in healthcare decision-making, and (3) participants' preferences for content and delivery method of ENABLE. Maximum variation sampling will be employed to ensure diverse representation, and data collection will continue until saturation is achieved. Interview audio recordings will be transcribed verbatim and analyzed using Braun and Clarke's reflexive thematic analysis approach. The analysis will involve iterative coding to identify patterns and the development of themes that align with the core components of the ENABLE model while ensuring cultural relevance. Trustworthiness and rigor will be ensured through reflexivity, peer debriefing, and data triangulation, ensuring credible and robust findings to guide the cultural adaptation of the ENABLE model for Iran. DISCUSSION: This study will develop a framework for adapting the ENABLE model to Iran, offering insights into cultural and contextual factors influencing palliative care. The adapted model aims to enhance the quality of life for individuals with HF and their caregivers while addressing gaps in palliative care delivery in Iran.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.