Evidence map›Paper›PMID 39835333›Full record

ArticleInternational journal of mental health nursing2025

'Wisdom Is Knowledge Plus Experience': Qualitative Study of Lived Experience and Researcher Perspectives on Suicide Research Co-Production.

Karolina Krysinska, Ingrid Ozols, Trisnasari Fraser, Michelle Banfield, Jacinta Hawgood, Kairi Kõlves, Victoria Ross, Martina McGrath, Bronwen Edwards, Karl Andriessen

Abstract read
In one paragraph

Article in International journal of mental health nursing, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed.

  1. Article
  2. Meta-Research on the Science of Lived Experience Engagement in Mental Health and Substance Use Health Research: A Scoping Review and Qualitative Synthesis.Health expectations : an international journal of public participation in health care and health policy · 2026
    Article
  3. Article
  4. Article
  5. Towards Coproduction in Mental Health Academia: A Cooperative Inquiry.International journal of mental health nursing · 2025
    Article
  6. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Karolina KrysinskaCentre for Mental Health and Community Wellbeing, Melbourne School of Population and Global Health, The University of Melbourne, Melbourne, Victoria, Australia.ORCID https://orcid.org/0000-0002-7033-6904
Ingrid OzolsMentalhealth@Work, Melbourne, Victoria, Australia.ORCID https://orcid.org/0000-0003-2397-2921
Trisnasari FraserCentre for Mental Health and Community Wellbeing, Melbourne School of Population and Global Health, The University of Melbourne, Melbourne, Victoria, Australia.ORCID https://orcid.org/0000-0001-7636-4570
Michelle BanfieldANU College of Health and Medicine, Canberra, Australian Capital Territory, Australia.ORCID https://orcid.org/0000-0002-3024-1687
Jacinta HawgoodAustralian Institute for Suicide Research and Prevention, World Health Organization Collaborating Centre for Research and Training in Suicide Prevention, School of Applied Psychology, Griffith University, Mt Gravatt, Queensland, Australia.ORCID https://orcid.org/0000-0002-4476-450X
Kairi KõlvesAustralian Institute for Suicide Research and Prevention, World Health Organization Collaborating Centre for Research and Training in Suicide Prevention, School of Applied Psychology, Griffith University, Mt Gravatt, Queensland, Australia.ORCID https://orcid.org/0000-0002-1638-8981
Victoria RossAustralian Institute for Suicide Research and Prevention, World Health Organization Collaborating Centre for Research and Training in Suicide Prevention, School of Applied Psychology, Griffith University, Mt Gravatt, Queensland, Australia.ORCID https://orcid.org/0000-0002-6768-1205
Martina McGrathCentre for Mental Health and Community Wellbeing, Melbourne School of Population and Global Health, The University of Melbourne, Melbourne, Victoria, Australia.ORCID https://orcid.org/0000-0003-2090-2223
Bronwen EdwardsRoses in the Ocean, Newstead, Queensland, Australia.ORCID https://orcid.org/0000-0001-5602-822X
Karl AndriessenCentre for Mental Health and Community Wellbeing, Melbourne School of Population and Global Health, The University of Melbourne, Melbourne, Victoria, Australia.ORCID https://orcid.org/0000-0002-3107-1114

Funding

Federal GovernmentSuicide Prevention Australia
6 · The paper itself

Abstract

The need for involvement of people with lived experience of suicide in the conduct of suicide research and intervention has been recognised in research and policy. However, there is limited understanding and guidance on how to support their genuine and safe engagement in suicide research. This qualitative study considered the perspectives of 19 people with lived experience of suicide, and 17 researchers engaged in suicide-related research to explore their needs, expectations and experience of co-produced suicide-related research. Data was collected between October and December 2020 via semi-structured interviews. Thematic analysis resulted in five themes: (1) towards co-production, (2) power imbalances, (3) heterogeneity of lived experience, (4) enhancing safety and (5) value of co-production. Participants considered lived experience involvement at all stages of research to improve research impact and outcomes. However, persisting power imbalances were experienced by participants and participatory approaches did not always align with existing research systems and organisational structures. Complexities identified by participants related to accommodating different skills, experiences and social identities of those with a lived experience perspective and balancing safeguarding principles with strength-based approaches that may capitalise on participants' existing strengths. Delphi guidelines developed from an associated consensus study on active involvement of people with lived experience of suicide in suicide research address some of the concerns mentioned by study participants and form a useful resource to guide future research endeavours.

Indexed as

Research PersonnelSuicideAdultFemaleHumansInterviews as TopicMaleMiddle AgedQualitative Researchco‐productionlived experiencepreventionresearchsuicide

Identifiers

PMID39835333
PMCPMC11747945

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.