Evidence map›Paper›PMID 39828940›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2025

Developing, Piloting and Evaluating a Patient Support Portal for Men With Prostate Cancer in Victoria: An Action Research Study.

Benjamin Shemesh, Jacinta L Opie, Rodney L Dunn, Garth Mclaughlin, Vivek Argawal, Amanda Pomery, Chris Mac Manus, Colin O'Brien, Katrina Lewis, Max Shub and 5 more

Abstract read
In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Models, outcomes, barriers, and facilitators of supportive care in cancer: a scoping review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

15 authors.

Benjamin ShemeshSchool of Public Health and Preventive Medicine, Monash University, Melbourne, Victoria, Australia.
Jacinta L OpieSchool of Public Health and Preventive Medicine, Monash University, Melbourne, Victoria, Australia.
Rodney L DunnDepartment of Urology, University of Michigan, Ann Arbor, Michigan, USA.
Garth MclaughlinMovember, Melbourne, Victoria, Australia.
Vivek ArgawalMovember, Melbourne, Victoria, Australia.
Amanda PomeryMovember, Melbourne, Victoria, Australia.
Chris Mac ManusSchool of Public Health and Preventive Medicine, Monash University, Melbourne, Victoria, Australia.
Colin O'BrienConsumer Representatives, Melbourne, Victoria, Australia.
Katrina LewisMedical Services Division, Alfred Health, Melbourne, Victoria, Australia.
Max ShubConsumer Representatives, Melbourne, Victoria, Australia.
Paula WiltoneHealth Division, Victorian Department of Health, Melbourne, Victoria, Australia.
Prassannah SatasivamDepartment of Urology, Northern Health, Melbourne, Victoria, Australia.
Melanie EvansVictorian Cancer Registry, Cancer Council Victoria, Melbourne, Victoria, Australia.
Jeremy MillarSchool of Public Health and Preventive Medicine, Monash University, Melbourne, Victoria, Australia.
Sue M EvansSchool of Public Health and Preventive Medicine, Monash University, Melbourne, Victoria, Australia.

Funding

This study was funded by the Victorian Agency for Health Information and Movember.
6 · The paper itself

Abstract

introductionMen with prostate cancer (PCa) and their support providers face challenges in accessing high-quality, impartial information tailored to their specific needs to enhance their overall care and decision-making. We describe the development, piloting and evaluation of the co-designed web portal 'BroSupPORT'.

methodsIT teams developed and integrated BroSupPORT into the Victorian Prostate Cancer Outcomes Registry (PCOR-Vic) electronic patient-reported outcome follow-up process. A comparator tool was built enabling men to compare their patient-reported outcome results against men of similar age, risk profile and after the same treatment. PCOR-Vic participants were invited to access BroSupPORT after 12 months of follow-up patient-reported outcome measure completion. Factors associated with consent to BroSupPORT were determined using logistic regression. Portal access data were gathered from PCOR-Vic data extracts and Google Analytics. A survey on portal exit and 2 weeks after consent was used to collect feedback.

resultsOver a 4-month pilot, 331/583 (57%) men consented to accessing BroSupPORT. Among those men who accessed the portal, the majority (209/331 =63%) were diagnosed in a private hospital and resided in a major city (214/331=65%). On average, men spent 3:20 min on the portal, with sexual function aspects receiving the most attention. Twenty-three percent of men revisited the portal during the pilot. Most men found the portal easy to use, reassuring and informative, while 9% found the patient-reported comparisons difficult to interpret.

conclusionA patient portal-enabling men to compare their patient-reported outcomes with other similar men and providing access to information and resources-may be a scalable solution in addressing the complex supportive care needs of men with PCa on a population basis.

Indexed as

Patient PortalsProstatic NeoplasmsAgedHumansMaleMiddle AgedPatient Reported Outcome MeasuresPilot ProjectsVictoriacomparatorpatient portalpatient‐reported outcomesprostate cancersupportive caretool

Identifiers

PMID39828940
PMCPMC11743188

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.