ArticleJournal of gastrointestinal surgery : official journal of the Society for Surgery of the Alimentary Tract2025
Challenges faced by patients undergoing fecal ostomy surgery: a qualitative study of colorectal cancer patient perspectives.
Article in Journal of gastrointestinal surgery : official journal of the Society for Surgery of the Alimentary Tract, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 10 papers, 1 of them a synthesis that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
10 citing papers in PubMed, 1 synthesis or guideline pooled it.
- The invisible wall: experiences of social isolation in colorectal cancer patients with ostomy-a qualitative meta-synthesis.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Pooled it
- Family care and social alienation in patients with colorectal cancer and an ostomy: The sequential mediating effects of resilience and stigma.Asia-Pacific journal of oncology nursing · 2026Article
- A multidisciplinary virtual (p)rehabilitation model of care for colorectal cancer surgery.World journal of surgical oncology · 2026Article
- Beyond the operating room: Holistic support for frail surgical patients.Journal of clinical anesthesia · 2026Article
- Where healthcare systems fall short in long-term ostomy care: implications for quality of life, healthcare utilization, and sustainable care pathways.Frontiers in gastroenterology (Lausanne, Switzerland) · 2026Review
- Article
- Challenges, care gaps, and coping mechanisms in patients with advanced cancer and their caregivers following palliative gastrointestinal surgery.Palliative care and social practice · 2026Article
- Attitudes toward seeking professional psychological help among patients with colorectal cancer: A latent profile analysis.Asia-Pacific journal of oncology nursing · 2025Article
- Advances in Hereditary Colorectal Cancer: How Precision Medicine Is Changing the Game.Cancers · 2025Review
- Quality of Life and Psychophysical Consequences in Individuals with Intestinal Stoma: An Observational Study.International journal of environmental research and public health · 2025Observational
Corrections and comments
- Erratum issued
Authors and funding
9 authors.
Funding
Abstract
backgroundEducation and support for ostomy are instrumental in surgical recovery and adaptation. This study aimed to evaluate (i) the challenges faced by fecal ostomy patients with colorectal cancer and (ii) the resources necessary for recovery.
methodsThis study recruited patients 21 to 90 days after scheduled fecal ostomy surgery for locally advanced or metastatic colorectal cancer from a single tertiary academic center. This study conducted 1:1 semistructured interviews until thematic saturation using hybrid deductive-inductive coding.
resultsThis study interviewed 20 patients (80% male; mean age of 59.7 years). Several major themes emerged, including challenges in (i) practical ostomy management, (ii) emotional distress, (iii) adaptation to daily life, and (iv) provider relationships. The participants faced ostomy care challenges owing to peristomal skin issues, leaks, and difficulty ordering supplies. Many participants noted significant distress or anxiety related to embarrassment caused by leaks, odors, or noise. This distress led participants to fear going out in public, embarrassment from the ostomy, and anxiety about their daily activities (eg, returning to work and relationships). When adapting to life with an ostomy, several participants noted that anxiety affected their ability to care for the ostomy and resume their daily activities, leading to social isolation. Patients reported challenges with provider relationships and a lack of anticipatory guidance from the surgical team preoperatively, including insufficient education on practical management, ordering of ostomy supplies, ensuring adequate hydration, and maintaining proper nutrition.
conclusionPatients with colorectal cancer who require fecal ostomy face several challenges related to ostomy. Interventions that address practical management, navigating distress, adaptation, and provider education are needed to provide tailored education and support.
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