Evidence map›Paper›PMID 39817105›Full record

ArticleActa medica Philippina2024

Social Media Content Analysis of Public and Private Glucose-6-Phosphate Dehydrogenase (G6PD) Deficiency Facebook Groups.

Ebner Bon G Maceda, Michelle E Abadingo, Bubbles Beverly N Asor, Rizza Kaye C Cases, Renchillina Joy G Supan, Kia S Anarna, Patricia Carla A Libo-On, Theodore Delfin C Vesagas, Ma-Am Joy R Tumulak

Abstract read
In one paragraph

Article in Acta medica Philippina, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

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Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Ebner Bon G MacedaInstitute of Human Genetics, National Institutes of Health, University of the Philippines Manila.
Michelle E AbadingoNewborn Screening Reference Center, National Institutes of Health, University of the Philippines Manila.
Bubbles Beverly N AsorDepartment of Sociology, College of Social Science and Philosophy, University of the Philippines Diliman.
Rizza Kaye C CasesDepartment of Sociology, College of Social Science and Philosophy, University of the Philippines Diliman.
Renchillina Joy G SupanDepartment of Sociology, College of Social Science and Philosophy, University of the Philippines Diliman.
Kia S AnarnaNewborn Screening Reference Center, National Institutes of Health, University of the Philippines Manila.
Patricia Carla A Libo-OnNewborn Screening Reference Center, National Institutes of Health, University of the Philippines Manila.
Theodore Delfin C VesagasNewborn Screening Reference Center, National Institutes of Health, University of the Philippines Manila.
Ma-Am Joy R TumulakInstitute of Human Genetics, National Institutes of Health, University of the Philippines Manila.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: As social media continue to grow as popular and convenient tools for acquiring and disseminating health information, the need to investigate its utilization by laypersons encountering common medical issues becomes increasingly essential. Objectives: This study aimed to analyze the content posted in Facebook groups for Glucose-6-Phosphate Dehydrogenase (G6PD) deficiency and how these engage the members of the group. Methods: This study employed an inductive content analysis of user-posted content in both public and private Facebook groups catering specifically to G6PD deficiency. The G6PD Facebook groups with 10 or more posts within the past 12 months were selected for this study. Data were harvested from posts and comments using ExportComment. Results: A total of 46 G6PD-related Facebook groups were identified. Of which, 19 were public and 27 were private groups, with an average membership of 5000-6000 accounts. After eligibility based on criteria and authorization for private groups, 3 public and 3 private groups were included, with the majority of these groups focused on sharing information. Five main themes of posted content were identified: diagnosis, management, beliefs, psychosocial factors, and medical requirements. "Diagnosis"-related posts referred to conversations about the causes and symptoms of G6PD, "management" referred to medication or diet, "beliefs" involved traditional or lay perceptions, "psychosocial factors" referred to posts that disclosed how psychosocial factors influenced G6PD deficiency practices, and "medical requirements" referred to documentation regarding the condition. The bulk of these posts used three strategies for communication: information-requesting, self-disclosure, and promotion of products/services. Information requests were the most common.

conclusionThe results of the study showed opportunities and challenges in health education on G6PD, especially in evaluating the credibility and accuracy of the information given and received. Looking at the content and manner of communicating information noted, the newborn screening program may improve its advocacy and education campaign, and may develop targeted educational materials and effective dissemination strategies that could clarify, explain, or refute information and beliefs mostly shared on these platforms.

Indexed as

Facebook groupG6PD deficiencyonline communitiessupport groups

Identifiers

PMID39817105
PMCPMC11732595

What OpenQuestion holds

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LicenceCC BY-NC-ND
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.