ArticleJournal of intellectual & developmental disability2024
Parents' tacit knowledge of their child with profound intellectual and multiple disabilities: A qualitative study.
Article in Journal of intellectual & developmental disability, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers, 1 of them a synthesis that pooled it.
What it found
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The trial behind it
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Who cites it
7 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Studying the Experiences of Children With Moderate to Profound Intellectual Disabilities in Research: A Systematic Review.Journal of intellectual disability research : JIDR · 2026Pooled it
- Quality of life among individuals with profound intellectual and multiple disabilities: crossed perspectives of institutional caregivers and parents.Health and quality of life outcomes · 2025Trial
- Exploring Parents' Values in Healthcare Decision-Making for Rare Genetic Neurodevelopmental Disorders: A Qualitative Study to Inform Guideline Development.Journal of intellectual disability research : JIDR · 2026Article
- Life-Sustaining Treatment Decisions and Parent Caregiving Experiences for Children With Medical Complexity.JAMA network open · 2026Article
- The Value of Implicitness: An Empirical Ethics Analysis of Indonesian Everyday Family Involvement in a Palliative Care Setting.Asian bioethics review · 2026Article
- From Hidden Insights to Better Understanding: Physicians' Perspectives on Caregivers' Tacit Knowledge.Healthcare (Basel, Switzerland) · 2025Article
- An Ongoing Process: The Implementation of an Intervention for People With Profound Intellectual and Multiple Disabilities Over Time.Journal of applied research in intellectual disabilities : JARID · 2025Article
Corrections and comments
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Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundParents' tacit knowledge plays an important role in the care of persons with profound intellectual and multiple disabilities (PIMD). As little is known about its nature and use, we aimed to explore this parental tacit knowledge.
methodWe conducted semi-structured interviews with parents (
resultsParents described their tacit knowledge as the capacity to read their child's subtle signs, or to sense and "just know" their child's situation. They had developed this knowledge because of their shared history of proximity and interaction and emphasised that it was crucial in ensuring their children's needs are met.
conclusionsWe describe how parents' tacit knowledge contributes to "good care" for persons with PIMD, interpret the implications for (medical) care practice, and discuss ways to deal with its limitations.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.