ArticleJournal of intellectual & developmental disability2023
Vulnerable but stronger together: An interpretative phenomenological analysis of the experiences of mothers of young adults with profound intellectual and multiple disabilities during the COVID-19 pandemic.
Article in Journal of intellectual & developmental disability, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.
What it found
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Who cites it
3 citing papers in PubMed.
- Living Through the COVID-19 Pandemic: The Experiences of People With Profound and Multiple Intellectual Disabilities Through a Family Carer Lens.Journal of applied research in intellectual disabilities : JARID · 2025Article
- The health experience of children, adolescents and their families during the COVID-19 pandemic: an exploratory qualitative study in pediatric homecare.Frontiers in pediatrics · 2025Article
- What Would Have Helped People With Profound Intellectual and Multiple Disabilities in the UK During COVID-19?Journal of policy and practice in intellectual disabilities · 2024Article
Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundMothers of young adults with profound intellectual and multiple disabilities that live at home are less likely to be on the radar of formal services. We explored the experience of these mothers over the course of the COVID-19 pandemic.
methodsA qualitative study using three case studies. Transcripts were analysed using Interpretative Phenomenological Analysis.
resultsTwo overarching themes with various subthemes emerged. The first theme focuses on the impact of being a mother of a young adult with profound intellectual and multiple disabilities who lives at home during the COVID-19 pandemic. The second theme describes both the vulnerability and resilience of the broader system, as well as its need to experience togetherness.
conclusionsFamilies of a young adult with profound intellectual and multiple disabilities exhibit both resilience and vulnerability during the COVID-19 pandemic, underscoring the importance to support and promote the visibility of these families.
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