Evidence map›Paper›PMID 39814444›Full record

ArticleThe Journal of rheumatology2025

Psychometric Evaluation of the Scleroderma Skin Questionnaire: A Novel Patient-Reported Outcome for Skin Disease in Patients With Systemic Sclerosis.

Jeong Min Yu, John M VanBuren, Angela Child, Jessica S Alvey, Lisa A Mandl, Laura C Pinheiro, Shervin Assassi, Elana J Bernstein, Flavia V Castelino, Lorinda Chung and 20 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in The Journal of rheumatology, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

30 authors.

Jeong Min YuJ.M. Yu, MD, MS, K.S. Lakin, MD, MS, Division of Rheumatology, Hospital for Special Surgery, New York City, New York; aprilyuj@gmail.com.ORCID 0000-0002-9197-1878
John M VanBurenJ.M. VanBuren, PhD, A. Child, MS, J.S. Alvey, MS, Division of Pediatric Critical Care, Department of Pediatrics, University of Utah, Salt Lake City, Utah.ORCID 0000-0003-1350-5764
Angela ChildJ.M. VanBuren, PhD, A. Child, MS, J.S. Alvey, MS, Division of Pediatric Critical Care, Department of Pediatrics, University of Utah, Salt Lake City, Utah.ORCID 0000-0002-7388-4607
Jessica S AlveyJ.M. VanBuren, PhD, A. Child, MS, J.S. Alvey, MS, Division of Pediatric Critical Care, Department of Pediatrics, University of Utah, Salt Lake City, Utah.ORCID 0000-0002-8543-5884
Lisa A MandlL.A. Mandl, MD, MPH, Division of Rheumatology, Hospital for Special Surgery, and Department of Medicine, Weill Cornell Medicine, Department of Population Health Sciences, Weill Cornell Medicine, New York City, New York.
Laura C PinheiroL.C. Pinheiro, PhD, MPH, Department of Medicine, Weill Cornell Medicine, and Department of Population Health Sciences, Weill Cornell Medicine, New York City, New York.
Shervin AssassiS. Assassi, MD, MS, B. Skaug, MD, PhD, Division of Rheumatology, University of Texas Health Science Center at Houston, Houston, Texas.
Elana J BernsteinE.J. Bernstein, MD, MS, Y. Luo, MD, Division of Rheumatology, Department of Medicine, Columbia University Irving Medical Center, Vagelos College of Physicians and Surgeons, New York, New York.
Flavia V CastelinoF.V. Castelino, MD, Division of Rheumatology, Massachusetts General Hospital, Boston, Massachusetts.
Lorinda ChungL. Chung, MD, MS, Division of Immunology and Rheumatology, Stanford University and Palo Alto VA Health Care System, Palo Alto, California.ORCID 0000-0003-0072-6939
Luke EvninL. Evnin, PhD, Scleroderma Research Foundation, San Francisco, California.
Tracy M FrechT.M. Frech, MD, MS, Division of Rheumatology and Immunology, Vanderbilt University Medical Center, Tennessee Valley Health Care System, Veterans Affair Medical Center, Nashville, Tennessee.ORCID 0000-0002-5472-3840
Faye N HantF.N. Hant, DO, MS, Division of Rheumatology, Medical University of South Carolina, Charleston, South Carolina.ORCID 0009-0004-7076-1814
Laura K HummersL.K. Hummers, MD, MS, A.A. Shah, MD, MHS, Division of Rheumatology, Johns Hopkins University, Baltimore, Maryland.ORCID 0000-0002-4864-4011
Dinesh KhannaD. Khanna, MBBS, MS, Division of Rheumatology, University of Michigan, Ann Arbor, Michigan.
Kimberly S LakinJ.M. Yu, MD, MS, K.S. Lakin, MD, MS, Division of Rheumatology, Hospital for Special Surgery, New York City, New York.ORCID 0000-0001-9343-5545
Dorota Lebiedz-OdrobinaD. Lebiedz-Odrobina, MD, Division of Rheumatology, Department of Internal Medicine, University of Utah, Salt Lake City, Utah.
Yiming LuoE.J. Bernstein, MD, MS, Y. Luo, MD, Division of Rheumatology, Department of Medicine, Columbia University Irving Medical Center, Vagelos College of Physicians and Surgeons, New York, New York.ORCID 0000-0001-7710-2425
Ashima MakolA. Makol, MBBS, Division of Rheumatology, Department of Internal Medicine, Mayo Clinic, Rochester, Minnesota.ORCID 0000-0002-8748-898X
Jerry A MolitorJ.A. Molitor, MD, PhD, Division of Rheumatic and Autoimmune Diseases, Department of Medicine, University of Minnesota, Minneapolis, Minnesota.
Duncan F MooreD.F. Moore, MD, C. Richardson, MD, Division of Rheumatology, Northwestern University, Chicago, Illinois.ORCID 0000-0001-9469-0919
Carrie RichardsonD.F. Moore, MD, C. Richardson, MD, Division of Rheumatology, Northwestern University, Chicago, Illinois.ORCID 0000-0002-2541-175X
Nora SandorfiN. Sandorfi, MD, Division of Rheumatology, University of Pennsylvania, Philadelphia, Pennsylvania.
Ami A ShahL.K. Hummers, MD, MS, A.A. Shah, MD, MHS, Division of Rheumatology, Johns Hopkins University, Baltimore, Maryland.ORCID 0000-0002-1139-2009
Ankoor ShahA. Shah, MD, Division of Rheumatology and Immunology, Duke University, Durham, North Carolina.ORCID 0000-0002-6315-8089
Victoria K ShanmugamV.K. Shanmugam, MBBS, The George Washington University School of Medicine and Health Sciences, Department of Anatomy, George Washington University, Washington, DC.ORCID 0000-0002-5882-4884
Brian SkaugS. Assassi, MD, MS, B. Skaug, MD, PhD, Division of Rheumatology, University of Texas Health Science Center at Houston, Houston, Texas.ORCID 0000-0002-6689-4655
Virginia D SteenV.D. Steen, MD, Georgetown University Medical Center, Washington, DC.
Elizabeth R VolkmannE.R. Volkmann, MD, MS, Division of Rheumatology, Department of Medicine, University of California, Los Angeles, David Geffen School of Medicine, Los Angeles, California.
Jessica K GordonJ.K. Gordon, MD, MS, Division of Rheumatology, Hospital for Special Surgery, and Department of Medicine, Weill Cornell Medicine, New York City, New York, USA.

Funding

Clinical and Translational Science AwardUL1TR001873 · NCATS · COLUMBIA UNIVERSITY HEALTH SCIENCES · PI REILLY, MUREDACH P · 2016 to 2025
$99.0M
Disparities in COVID Disease Severity and Outcomes in New York CityUL1TR002384 · NCATS · WEILL MEDICAL COLL OF CORNELL UNIV · PI JULIANNE L IMPERATO-MCGINLEY · 2017 to 2026
$86.2M
NCATS NIH HHS UL1 TR001873NCATS NIH HHS UL1 TR002384
6 · The paper itself

Abstract

objectiveWe aimed to evaluate the psychometric properties of the Scleroderma Skin Questionnaire (SSQ), a novel patient-reported outcome (PRO) to assess systemic sclerosis (SSc)-related skin symptoms.

methodsParticipants were recruited from the SSc Collaborative National Quality and Efficacy Registry (CONQUER). Internal consistency was determined using Cronbach α and McDonald ω total (ω

resultsThe SSQ was administered to 799 adults (mean age 52.7; 83% female) enrolled in CONQUER. Cronbach α was 0.90 and ω

conclusionSSQ demonstrated high reliability and moderate correlation with mRSS and legacy PROs. This study provides initial support for SSQ, but not SSQ 6-Month, to assess skin symptoms in patients with SSc.

Indexed as

Patient Reported Outcome MeasuresScleroderma, SystemicSkin DiseasesAdultAgedFemaleHumansMaleMiddle AgedPsychometricsQuality of LifeRegistriesReproducibility of ResultsSeverity of Illness IndexSkinSurveys and Questionnairesoutcome assessmentoutcomesregistriessclerodermaskinsystemic sclerosis

Identifiers

PMID39814444
PMCPMC12772455

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.